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Subject:
From:
Michael Jones <[log in to unmask]>
Date:
Sat, 31 May 1997 23:50:02 -0500
Content-Type:
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<<Disclaimer:  Verify this information before applying it to your situation.>>

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
News Highlights~News Highlights~News Highlights~News Highlights~
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

1.  Celiac Cruise:  The Celiac Disease Foundation is inviting all celiacs to
join aboard the Superliner, IMAGINATION, August 23 - 30, 1997.  Departure
will be from Miami, Florida.  The ports of call in the Western Caribbean are:
Cozumel, Grand Cayman, and Ocho Rios, Jamaica.

For additional details contact: Classic Cruise & Travel, 1920 Ventura Blvd.,
#A, Woodland, CA 91364, (818) 346-8747, (800) 767-7447 or
e-mail:[log in to unmask]  Classic Cruise & Travel reports that special
foods will be prepared in accordance to the Celiac Disease Foundation
guidelines.

2.  Celiac Genetics Study:  The University of Utah is recruiting participants
for a study to detect genes that may predispose individuals to celiac disease.
They request sib pairs (brothers/sisters) and extended family members -
cousins, aunts, etc. (even distant cousins to volunteer for the study).

The previous requirement to be biopsy proven has been relaxed.  They now
desire samples from  pairs that are confidant that they are gluten
intolerant.  They pay for the blood draw.  If you are willing to contribute a
blood sample and a short questionnaire, please contact:

Jeff Black, University of Utah, Genetic Epideminology, 420 Chipea Way, #180,
Salt Lake City, UT 84101, (800) 444-8638 ext. 15075, FAX (801) 581-6052, E-
mail: [log in to unmask]

3.  Incorrect use of the term, Gluten: A new cookbook incorrectly lists these
grains as containing gluten: buckwheat, chickpea flour, garbanzo flour,
potato starch, and potato flour.  The book is My Kid's Allergic to Everything
Dessert, by Mart Harris and Wilma Nachsin from Chicago Review Press, Inc.

4.  Have you had your gluten today?  Several celiac newsletters recently had
articles on celiacs who believe that a little non-gf bread would have no
adverse effect.  Their logic is that they cannot live without the non-gf
selections.  Additionally, they feel that everyone cheats on this lousy
diet, and being on the diet does not improve their quality of life.

Luckily, several of these celiacs were able to find a knowledgeable celiac
who convinced them how a strict GF diet leads to excellent health and a great
feeling of wellness.  This feeling of wellness is second in consideration to
the increased long-tern risks associated with not adhering to a strict GF
diet.  We can never downplay how hard it is to eliminate all of the hidden
glutens, but some diseases are much harder.

5.  Pat Cassady Redjou author of the No-Gluten Solution and The No-Gluten
Solution's Children's Cookbook died in mid-September.  Send memorial
donations to the University of Iowa Foundation, Celiac Disease Research
Foundation, c/o Dr Joseph Murray, PO Box 4550, Iowa City, IA 52242.

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