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Subject:
From:
Melinda Freckleton <[log in to unmask]>
Reply To:
Melinda Freckleton <[log in to unmask]>
Date:
Thu, 16 Jul 2009 10:19:47 -0400
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<<Disclaimer: Verify this information before applying it to your situation.>>

Hello list!

	Thank you for the outpouring of ideas, support and recommendations.   
There were far too many responses to allow for individual replies.

	It seems I should have included a little more background.  I had  
several messages with questions about Lyme's diagnosis.   
Unfortunately, Lyme's disease diagnosis is not straightforward  
positive/negative and is often highly controversial.  Lab results  
conflict, and I fall in a grey zone.  Both my primary care doc and my  
infectious disease doc would qualify as "Lyme Literate."  (For those  
interested you might like www.lymenet.com). Many people expressed  
concern that my doctors are well informed about this disease since it  
is so controversial.  Both the doctors I am seeing are also well  
versed in Celiac.  And I have spent the last several months on oral  
antibiotics, with no improvement.  I want to be sure that all other  
possibilities are ruled out before undertaking the risks and  
restrictions associated with IV antibiotics.

	The following doctors/centers were recommended:
		Dr. Green at Columbia--"worth the wait"
		Dr. B. Robert Mozeyani at Optimal Health Physicians in Shady Grove  
MD for Lyme
		Dr. Samuel Shor  internal medicine in Reston VA
		Dr. Joseph Jemsek Infectious Disease in Charlotte, NC
		Dr. Fredrick Wigley at Johns Hopkins Rheumatology
		Mayo's celiac clinic
		NY Presbyterian
		Johns Hopkins

	The following doctors/centers were NOT recommended:
		The Cleveland Clinic
		The Lahey Clinic in Boston for failure to communicate between  
specialists

	Nutritional fixes suggested:
		Magnesium
		Potassium
		additional food allergies

Thanks again for all the ideas!  As most on this list know, it is very  
frustrating to be send from one specialist to another, and still feel  
miserable.  My current plan to to follow leads on a couple local  
rheumatologists, and if those fail, or the results are still nebulous,  
to head to Johns Hopkins or Mayo.




Melinda Freckleton DVM
Catlett, VA
[log in to unmask]





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