<<Disclaimer: Verify this information before applying it to your situation.>>

Celiac Sprue CSA/USA Chapter 100

DC Metro Area October Celiac Events:

---CSA Chapter Meeting  Guest Speaker - John Snyder, MD  Fairfax, VA

---CSA/USA National Conference in Erie, PA

---Chesapeake Celiac Support Group Meeting - Dr. Alessio Fasano

---FDA Focus Groups on  Labeling- Your Opinion Counts!


Celiac Sprue Fall Meeting
October 10th 4:00pm
WholeFoods, Fairfax, VA

CSA Chapter Meeting Sat. Oct. 10th 4:00pm
"Celiac Disease -Whats New"  - John Snyder, MD
Its an All Day Event at Whole Foods in Fairfax, VA!
4501 Market Commons Dr. Fairfax, VA
703-222-2058

1:00pm - 3:00pm Back by popular demand - Gluten Free Cooking Class
with Jules Shepard
Jules is the founder of
http://www.nearlynormalcooking.com/httpdocs/index.htm and a diagnosed
Celiac herself. Class will start at 1pm and their will be free product
samples, recipe cards and coupons to take home. There will be lots of yummy
food to taste and you can see how each is made so you feel confident making
it at home. After the class, Jules will answer any questions you may have
about gluten-free cooking as well as host a Cookbook signing! We will have
both of Jules books available for purchase at the book signing! Space is
limited so reservations are a must. Please sign up by emailing
[log in to unmask]

4:00pm "Celiac Disease -Whats New"
John Snyder, MD
Dr. Snyder is the chief of the Division of Gastroenterology, Hepatology
and Nutrition at Childrens National. He is considered an expert in a
variety of GI disorders. His current research interests include H. pylori
and celiac disease.
In addition to his multimedia lecture on whats new in Celiac Disease, he
will be discussing the Childrens National Medical Centers Celiac
Disease Program which offers comprehensive evaluation, treatment and
support for children with celiac disease. The program includes
internationally recognized experts in Gastroenterology, Laboratory Medicine, and
Pathology. The multidisciplinary team also includes dieticians with
extensive experience with pediatric celiac disease, nurses, physician
assistants, and counseling support through the
Division of Psychiatry and thesocial work team.

1:00pm - 5:30pm Gluten Free Food Fair
Food Samples and Give-a-Ways!

For more information about the meeting, contact:
Daniel DuBravec at [log in to unmask]
or call 571-289-5675
Directions to meeting:
http://www.wholefoodsmarket.com/stores/fairlakes/
Whole Foods
4501 Market Commons Dr.  Fairfax, VA 22033
703-222-2058


The Annual Celiac Sprue Association National Conference will be held in
Erie, PA this year!
Oct. 30 - Nov. 1st, 2009

The deadline for early registration for the CSA Annual Conference is
rapidly approaching.  Mailed registrations must be postmarked by midnight
October 12 to qualify for the lower registration fees.  Also register
before 4:00 pm Central time by calling 877-272-4272.   A very exciting
program is planned and we do not want anyone to miss out.
The conference will cater to individuals and families
who are interested in learning more about Celiac Disease through new
information
from researchers,health care professionals, chefs, gluten-free vendors
and others.

Distinguished list of speakers:
-Peter H. R. Green, MD
Columbia University
Department of Medicine
New York, NY
-Rodney Ford, MD
Professor of Pediatrics
University of Otago
Otago, New Zealand
-Francisco Leon, MD PhD
Dermatology Associates of Erie
Erie, Pennsylvania
-David C. Sands, PhD
Professor of Plant Pathology
Montana State University
Boseman, Montana
-Denise A. Copelton
The College at Brockport
State University of New York
Brockport, NY
-Mimi Waldman, MSN, PMHCNS-BC
Penn State
Erie, Pennsylvania
-Jean Guest, Phd, RD, LMNT
CSA Dietitian Advisor
Lincoln, Nebraska
-Anne R. Lee, MSEd RD, LD
Director of Nutritional Services
Santa Fe, New Mexico
-Veronica Alicea, RD, MBA
Consultant Dietician
Bridgewater, New Jersey
-Mark A. Dinga, MEd, RD, LDN
UPMC Nutrition Services
Pittsburgh, Pennsylvania
-Diana Stuber MA, RD, CDE
Nutrition Educator
Upstate Medical University
Syracuse, New York
-Michelle L. Sullivan, DO
Bill Sullivan, DO, Attorney at Law
Sullivan Medical Clinic
Frankfort, Illinois
-Mary Schluckebier, MA
CSA Executive Director
Seward, Nebraska
-The conference includes many activities including an "Octoberfest" Buffet,
a program for Children, Youth & Young Adults and the 4th Annual CSA
Dietitian Day. Register today by calling 877-272-4272


Chesapeake Celiac Support Group
October 9th, 6:30 - 8:30pm Health Sciences Pavilion - at Anne Arundel
Medical Center. Dr. Alessio Fasano Director of the Center for Celiac
Research at the U of MD
Dr. Fasano will give a presentation focusing on information from his
recently published article
http://rtburns.com/celiacs/wordpress/wp-content/uploads/2009/08/fasano1.pdf
“Surprises from Celiac Disease” which was just published in the Aug
2009 issue of Scientific American (p. 32-39).
- Latest statistics on the number of celiacs (vs number diagnosed)
- What is the difference between gluten intolerance and celiac disease?
- What are the health implications of being undiagnosed (and eating gluten)
- If you are celiac, should your family be tested?
- Celiac disease and other autoimmune diseases – What is the connection?
- Recent research re: treatments/medications (Alba Therapeutics)
Contact: Pat Minnigh  [log in to unmask]


Focus Groups on FDA Labeling
FDA Greenbelt, Maryland facility

The Celiac Sprue Association has been contacted by OMR, a market
research company, working with the FDA on labeling.  The FDA is putting
together focus groups to discuss labeling of gluten-free products.  The
groups will be held in our Greenbelt, Maryland facility.  We are also
coordinating groups in Los Angeles, CA and Newark, NJ.  Each group will
last about 2 hours and we are specifically looking for individuals who have
been medically diagnosed with Celiac disease; who prepare food for someone
who has been medically diagnosed with Celiac disease; or who follow a
gluten-free diet due to a medical diagnosis of gluten intolerance.
Anyone is qualified to participate (based on our screening criteria which
includes the above plus some demographic questions) and does participate in
the 2 hour in-person discussion will receive an honorarium of $75.  Please
pass the following contact information to anyone you feel may be interested
in participating in our study.
Study contact is Frances
email to [log in to unmask]
301-441-4660

* Send administrative questions to mailto:[log in to unmask] *
Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC