CELIAC Archives

Celiac/Coeliac Wheat/Gluten-Free List

CELIAC@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
Patricia Vigneau <[log in to unmask]>
Date:
Sat, 21 Oct 2000 18:08:30 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (152 lines)
<<Disclaimer: Verify this information before applying it to your situation.>>

Many thanks to ALL who responded to my questions about Lacose
Intolerance and CD. I received about 25 replies. Most said to stay dairy
free. Some said for 6 months, others for at least a year, and others
said even longer.  Most also said to go ahead and try using lactaid
pills, but to keep in mind that it may not be the lactose, but the
casein enzyme you are reacting to.  Some said that Lactaid Regular and
Ultra pills are GF, but that Lactaid milk is NOT GF. All agree that each
celiac is different, and has to try for themselves to see what they can
and cannot tolerate.

..........

When the intestinal villi are ground down by gluten molecules instead of
looking like a shag carpet, they are like a hardwood floor. The Lactase
enzyme, which digests milk sugar, hides in the "carpet." When all that
is left is the "hardwood floor" the enzymes (not just lactase) tend to
get swept out as the partially digested food passes by. Add too that the
fact that many people stop producing as much lactase after 40-50 and you
can have a lot of trouble with milk products.  All Lactaid does is
supply the lactase enzyme (beano works the same way for the enzymes
which digest the sugars in beans). As a result you need to take it just
before you have the milk product. A few hours later and it is gone.
Lactaid milk works the same way. Some people can eat yogurt and aged
cheeses as the milk sugars are digested by the acidophilus bacteria that
they have.

..........

According to my nutritionist, it's not necessary to remain on a
lactose-free diet after your celiac symptoms are gone, and you're
feeling better.  If  after you begin ingesting dairy products you notice
a problem, then it would be wise to remain lactose-free for a while
again.

..........

The response I got from the company (makers of lactaid) was that they
could not commit to whether the milk was gluten free. However, there
regular and ultra pills are GF.

..........

personally I would avoid - you need to make sure you are workign with a
doctor- are you taking l-glutamine?  this is an amino acid that helps
repairs the intestines - lactose will continue to damage your intestines
so I would stay off of it for at least 6 months

..........

I found that during the first year that they did not help much at all on
dairy foods (especially cheeses) , and I couldn't stand the taste of the
Lactaid milk.

..........

A GF lactose pill will be of benefit.  As for waiting a year, I did not
have that long a wait, maybe a few months.  Try dairy a little at a time
to see what, if any, reaction you have.

..........

My understanding is that the Lactaid is not GF.  Another consideration
is that we sometimes are casein intolerant since the casein protein is
so similar to the gluten protein molecule.  This is what may cause some
of the symptoms.

..........

In the normal course of events of going gf, it takes approx 3 years to
rebuild the gut {lelaky gut syndrome].  However, you can shorten that
time by taking two supplemnets which heal the gut. with each meal take
one of each of these: L-glutamine 500 mg and ProBiotics Comples or
Probiotics 8.  Glutamine is an amino acid which is a catalyst, gets
ozygen to the brain.  Probiotics is a multi strained, very potent form
of acidophilus which heals the gut.  I was no longer li after six months
on this formula.  YOu will need to take this on a reg basis, tho, for
the rest of your life.

..........

Lactose does not cause any villi or other structural damage; it just
gives you gas and diarhea. So feel free to experiment. Try drinking some
milk, try using lactaid (which consists of the enzyme you are not
currently producing in sufficient quantities), and see what bothers you.
If it feels bad, stop.

..........

I have been taking lactaid caplets for years with fantastic results.  I
take a caplet of the ultra-lactaid (or two depending upon if I am eating
a large quantity) at the time that I am ingesting a lactose containing
product.

..........

for the first year you should simply avoid dairy except perhaps for hard
aged cheeses such as cheddar and swiss. Definitely no processed cheeses.
And watch out for Lactaid milk. It may cause no noticeable reaction, but
it used to have gluten in it.

..........

Because CD damages the villi that normally produce the body's own
lactase enzyme, many or most celiacs are lactose-intolerant until the
body heals. The lactase tablets work by providing the enzyme (lactase)
that you need to digest the milk sugar (lactose) in dairy products. You
only take them when you will be consuming a product containing lactose,
and you can take them as often as you need them. Lactaid brand regular
and ultra tablets are gf, but I'm not sure about any others.

..........

Have you heard of the Specific Carbohydrate diet?  It is a GF diet. No
lactose is allowed. The sc diet also doe NOT allow ANY GRAINS BUT IT
ALSO offers a possible cure for celiac and other intestinal diseases
after one year on the diet. <<??>> The book BREAKING THE VISCIOUS CYCLE
by Elaine Gottschall may also be available in your local library.

..........

I went to a Celiac meeting on Sunday and the nutritionist with the group
gave a talk.  One of the things she talked about was lactose
intolerance. The enzyme lactase which breaks down lactose is made on the
tips of the villi in your small intestine.  Since the villi are
flattened when you are first diagnosed with celiac that is why you are
lactose intolerant.  You can use the lactaid pills just before you are
going to eat something with lactose. You can try to add little bits of
lactose at a time and see how much you body can take.  The nutritionist
suggested yogurt with live active cultures because the cultures help
break down the lactose.

..........

Many people's milk problems come not from lactase but from a protein in
dairy products called casein.  In this case, lactaid milk or use lactose
pills will be of no help.

..........

Just from my own experience, do NOT use Lactaid cottage cheese (I bought
some to make a gf lasagna).  Right there on the label it says (something
like) "food starch" or "wheat flour" (can't remember).  Anyway, I called
the manufacturer and the rep told me it does contain gluten to make it
more gummy!

Thanks again for your input. I see my GI in 2 weeks, so I think I will
wait and talk with him at that time about all of this!

Pat V in NJ

ATOM RSS1 RSS2