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Subject:
From:
Elisabeth Bass <[log in to unmask]>
Reply To:
Elisabeth Bass <[log in to unmask]>
Date:
Fri, 20 Nov 2009 08:13:17 -0500
Content-Type:
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<<Disclaimer: Verify this information before applying it to your situation.>>


>
> First, thank you for the supportive responses.  I was feeling  
> overwhelmed, so it's good to know that others are on the same  
> journey (and doing fine).
> 	Summary:
> 	. There are people with both diagnoses, but the two are considered  
> unrelated conditions.
> 	. One piece of good news is that the gluten free diet is good for  
> both conditions.
> 	.  Crohn's also responds positively to the Specific Carbohydrate  
> Diet (and people suggested various texts, websites, and cookbooks),  
> or the Paleo diet
> 		 http://www.pecanbread.com/
> 		http://www.scdiet.org/
> 		http://www.breakingtheviciouscycle.info/
> 	.  Some people thought that I should make sure she is not just  
> responding to hidden gluten or other food sensitivities (Definitely  
> no gluten, no milk, 		maybe no soy).
> 	.  People also provided links to some research including stem cell  
> and new drugs
> 			Low dose naltrexone has been used for those with Crohn's
> 			http://www.lowdosenaltrexone.org/ There is an ongoing clinical  
> trial
> 			http://clinicaltrials.gov/ct2/show/NCT00663117? 
> term=naltrexone&rank=4
> 	. Some suggested doctors but I am happy with the one we now have  
> (I waited a year to get an apt. with him because he is on the board  
> of a national celiac organization and works at the medical school  
> where my daughter is enrolled--she is 23 and a first year medical  
> student).
>
> Best of all was the compassion evident in the responses.
> Thank you again,
> Lis
>


* Please remember some posters may be WHEAT-FREE, but not GLUTEN-FREE *
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