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Hi everyone,
below is an email I sent off quite some time ago to a public
forum as well as this in the hope to try to get some feedback that could be off
assistance. Below it is where I am at now.
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Approximately 3-4 Months ago I had some sort of severe stomach virus
where I had severe stomach pains and stool that was literally liquid.
I had this for approximate a
week. Unfortunately after having this I have been suffering from mild
diarrhea & a sore upper stomach and upper back off & on ever since. .
I have recently been to the doctor & got a long list of blood test &
stool samples conducted.
Everything came back good. Normal for iron, normal for B12, except for
one result. My IgG was 84 where normal is supposed to be <34. However
my other tests for celiac came back good.
Celiac Panel test results (exactly as they are written):
Gliadin IgA (EIA) < 20 AU/mL Normal (< 34)
Gliadin IgG (EIA) 84 AU/mL Normal (< 42)
Endomysial Antibodies Negative
Total IgA 1.91 g/L Normal range ( 0.85-3.50)
Transglutaminase IgA Ab <7 AU/mL Normal (< 7)
Also, all my stool tests came back fine for any infections etc. I
don't remember the exact tests done on my stool, but I do know that it
consisted of a large array of things, including looking for
infections.
based on the Celiac Panel results I was referred to a GI
specialist & after informing him of my symptons & how long I have had
them he came to the conclusion that I probably have a bad stomach
virus that is still lingering in my system, undetected by the stool
sample & that it will probably go away in due time. Nevertheless I
insisted I wanted a Gastroscopy performed for further isolation to the
possibility of Celiac Disease. The results came back relatively good,
both on the visual performed by the specialist & the tissue samples
examined by the Pathology lab. Only thing noted was that a Grade A
(mild) oesophagitis was noted on my XXX.Oesophagus.
After this I decided to try a Gluten free diet to see if my
problems go away. At first I thought I was on the right track Some
symptons went away, such as sore upper stomach & back pain & at one
stage I thought I was almost better, but unfortunately most symptons
soon relapsed. I've tried to isolate it down to other foods as a
possible cause & or combination, but everytime symptons come back
again I can't seem to make absolutely any correlation with what I eat.
& now I have even gone to the point of paranoia with gluten incase I
might have been getting it in my diet without realizing.
In my efforts to continue to find out what is wrong with me I
continued down the track with DNA testing for predisposing genes
towards Celiac as that was the only thing I had to ( and still do) to
work with. My Genotype report by a lab in Australia is:
DQB1*0501,0603
DQA1*01
As reported on the test, these results show that I don't have the 2
most common HLA types (DQ2 & DQ8) for predisposition towards celiac.
However I do have subtypes of DQ1 which I just discovered from making
an enquiry to Dr Fine from Enterolab, which a predisposing genes to
Gluten intolerance (Not necessarily Celiac) & Neurological disorders.
I decided to Order tests from Dr Fine in order for more further
isolation. I ordered the "Gluten Sensitivity Stool Panel Complete "
without the gene test component as I already know where I stand
there.. After over 10 days of waiting the test kit came in the mail.
I don't want to do the test just yet becuase I am currently taking
Flagyl (Metronidazone) as prescribed by my local GP as they believe I
might just have a persistent parasite in my system that Flagyl should
take care of. I am on my last day of the course & unfortunately
(again) I feel no different.
In the next few days I will send my stool sample to Dr fine for
analysis. Apart from that I am not really sure what else to do. Even
if the test do come back as showing gluten intolerance, I have already
removed gluten from my diet with only some improvements.
My Local GP stated they wanted to send me to have a Colonoscopy
if the Flagyl Antibiotics didn't work.
I am looking at doing the 113 IgG Food Intolerance test
administerd by Yorktest.com as well in a hope to find out the other
offending foods. If infact this is the problem.
The exact symptons I have are:
- Stomach & upper back pains off & on. Only when I was on my normal
diet (with gluten). I have reintroduced gluten for a few days once &
these symptons didn't reoccur. Perhaps they would over time whilst
consuming gluten.
- Unable to focus alot of the time. This occurs with & without gluten
in the diet.
- Irregular stool. I think this occurs all the time. But am not 100
percent sure.
- Constant dry skin on the hands.
- A considerable amount of flatulence. This occurs more often when
gluten is not in the diet.
- General consistent tiredness.
- Diarrhea. Strangely enough, this only started occuring alot worse
when gluten was removed from the diet. ALOT worse.
I have tried alternative medicines, including taking powerfull
probiotics (OMX) which I intend to continue with once I am off the
Antibiotics. I have also been to a Naturopath to try to work out what
is wrong with me & got nowhere.
And to reiterate, I was perfectly fine 3-4 months ago before having
the stomach virus for a week. Also yesterday I started reintroducing
gluten in the diet one more time & today I am actually feeling alot
better.
Can anybody offer some advice on what they think I should do??? Any
advice or just general opinions would be very much appreciated.
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Unfortunately to date symptons have worsened overall. I have had alot
more tests done but unfortunately, while some tests clearly show
something is wrong (Primarily melabsorption), none of them gave a
clear explanation as to why it is occurring. I have been to many other
specialist including another Gastrointestinal Specialist who actually
specializes in Celiac Disease. He stated that I definitely "Do not
have Celiac disease, however, there is certainly something wrong".
The additional tests I have had done are:
White Blood Cell Scan (WBC Scan) showed nothing abnormal
Colonoscopy - showed nothing
Functional Liver Detoxification Profile - Showed "Up regulated" Liver clearance
CDSA 1/2/3 - This showed Malabsorption
Intestinal Permeability (Strongly positive for this)
Fatty Acid Blood test - showed I am not absorbing fatty acids. Omega 3
& Omega 6 where both under the normal range
C-Reactive Protein Blood test (Negative for this)
IGG Food intolerance Blood Test http://www.usbioteklabs.com - showed
that I have a reaction to a large range of foods
Iron Studies blood test
In summary these tests showed that I have an "Up regulated" Liver
clearance during phase 1 of the Functional Liver Detoxification
Profile. This is suggestive that my liver is getting overloaded with
too many toxins from my small intestine according to the Doctor. The
CDSA test showed malabsorption was occuring. The IGG food intolerance
test showed that for some reason I am intolerant to vast range of
foods. In particular milk (Casein & lactose), gliadiin and eggs. My
Doctor stated that these food intolerances are most likely due to the
Intestinal Permeability that is occuring in the Intestine tract. This
is also known as Leaky Gut Syndrome. I have since removed these
possible major offending foods from my diet for the last 2-3 Months
altogether in every form.
I am taking many supplements to compensate as much as possible for
the malabsorption that is occuring & to heal the Intestinal
Permeability.
The supplements worth mentioning include:
L-Glutamine
Primal Defense Probiotics (Non Dairy derived)
B12 & Iron Supplement
Omega 3 Fatty Acid supplement
Intestamine. A powder formulated specifically to treat & heal Leaky Gut.
Just last week I had a repeat of the symptons I had at the very start,
however in a more mild form. This included the same stomach pains,
together with the liquid stools. Fortunately this has almost settled
back down again. With the repeat of the initial symptons I am thinking
that perhaps I may have an viral infection that hasn't been detected
in any stool test yet.
Can anybody offer any feedback or theories on what they believe could
the wrong? Because currently the doctors are running out of ideas
fast. :-(
Thanks to all who reply in advance.
Brad.
*Support summarization of posts, reply to the SENDER not the CELIAC List*
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