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From:
"Taylor, Shannon HHHH" <[log in to unmask]>
Reply To:
Taylor, Shannon HHHH
Date:
Tue, 2 Dec 2008 17:03:07 -0500
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<<Disclaimer: Verify this information before applying it to your situation.>>

My 20 year old daughter has been diagnosed with celiac since age 14.
She is very careful about her diet, does not drink alcohol, and is
genrally in pretty good health.  For the past 3 months she has been
having Rt upper quadrant abdominal pain. She decribes it as a constant
dull pain and then she gets sharp, stabbing pains frequently.  She's
also been having diarrhea all this time, and nausea.  She rarely eats
fatty or fried foods, avoid dairy most of the time as I don't think her
villi ever fully recovered enough to produce lactase. She's had similar
episodes in the past that lasted months.

Her doctor and I both feel this is gallbladder pain, yet all the testing
he has done has come back normal. She had a HIDA scan done 4 weeks ago
that showed normal gallbladder function and no stones.

We ended up in the ER last night because she was doubled over in pain.
Again, everything looked normal except she was dehydrated from all the
diarrhea. The ER doctor was very kind and symapthetic but could not give
us any answers excpet to go ahead with a cholecystectomy to see if the
pain is indeed gallbladder related.

I'm a nurse and have always been told that people with bowel disease
should avoid having their gallbladder removed because it can cause
dumping syndrome.  I've seen patients end up with some serious
malabsorption issues. So I'd like to avoid just removing her gallbladder
if there is any other way to manage this. Her GI MD feels the same way.
But she's trying to work and go to college, and she is just miserable.

Has anyone else dealt with this, or have any advise for us?  She is
willing to pursue alternative treatments if it can help, and is talking
with her MD about starting an antidepressant to help her manage stress
and chronic pain. We're also considering a strict food elimination diet
to see if we can discover foods that are triggering her pain.  We are
pretty much willign to try anything at this point!

Thanks in advance for any advise....Shannon (frustrated Mom of Jasmin) 

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