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From:
Gina McKenzie <[log in to unmask]>
Date:
Sun, 19 Mar 2000 21:52:31 -0500
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<<Disclaimer: Verify this information before applying it to your situation.>>

Thanks to everyone.  Sorry I didn't send out personal messages to everyone,
I got 56 responses which is wonderful, but it was too much to write to
everyone.  Thanks again!

Opinions on an RLS and CD connection are just about 50/50.  Some firmly
believe that their jumpy legs improved or disappeared with their gf diet,
while others state it did not improve.  Others stress the importance of not
connecting every medical problem with celiac disease, and state they know
non-celiacs with RLS.  In any case, here are suggestions and opinions I
received, whether or not they believed there is a CD connection.  (Please
remember to check the gf status of any suggestion, as I have not done this
I am merely summarizing.)

-restless leg syndrome home page is http://www.rls.org

-tonic water.  The quinine in it is the universal quieter for restless
legs. (2 suggestions for tonic water.)

-For really bad nights, take half a valium.  It relaxes them. (2
suggestions for sedatives)

- 1 person stated it went away after stopping anti-depressant medication
(Zoloft)

-1 person says it gets worse when consuming sleeping medications

-1 thinks a caffeine consumption connection

-1 takes Klonopin (anti-seizure medication) which has been a life-saver

-3 people indicate a Parkinson's connection 2 of which take Parkinson's
medication which helps

-stretching exercises that have helped quite a bit. One you can try is:
stand a couple of feet from a wall. Lean forward without bending your knees
(i.e. keep your legs straight). This puts a stretch on the muscles in the
backside of your legs. Keep trying with your feet further and further from
the wall so you get the maximum stretch without too much pain. It seems to
help me most to hold this position for a while--perhaps 10 to 30 seconds
and repeat it a couple of times.

-1 stated "SPINAL STENOSIS WHICH CAUSED A LOT OF PAIN IN LEGS."

-a lack of either calcium/magnesium (11 people)

-a lack of potassium (4 people)

-a vitamin B deficiency (3 people)

-taking a vitamin E supplement (1 person)

-lactose, for which Lactaid helps (1 person)

-I usually walk in the evening and that seems to help

-Another sure remedy is a sauna or a very hot bath, this one always works
beautifully.

-Could it be that his electrolytes are low?  Buy some really good sea salt
and put a pinch on his food after it is cooked...the sea salt that comes
out of the ocean in France contains lots of minerals other than sodium and
might help.  OR buy some Gatorade and drink it when the problem starts.

-I have read of an association with iron deficiency (actually, low serum
ferritin levels, or iron stores, not just iron)

-varicose veins removed helped (1 person)

-A few things help: having the leg at the temperature it prefers, getting
just the right amount of exercise (not too much or two little), having
shoes that fit well, being well hydrated.

-I really think mine had to do with a little too much exercise.  It still
bothers me if I sit still for any longer than one hour (movie theater,
airplane, etc)

-Mostly I associate it with how active I've been.  It seems to me that I
only get it when I've been inactive;  maybe my legs need to burn up some
energy.

-It is a sign for me that I am fatigued and need to sleep or exercise.

-I found out it is the gluten that the animals eat. The only thing you can
do is go to completely wild meat - look at www.paleodiet.com you will find
some of these.

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