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From:
Jane Noga <[log in to unmask]>
Date:
Sat, 19 May 2001 15:50:53 -0400
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<<Disclaimer: Verify this information before applying it to your situation.>>

These are the answers I received:

http://www.celiaccenter.org   is the site for the Univ. of Maryland
celiac study- they will test for free- for family members of celiacs, I
believe.  It may take several months though! [From jnoga -- I believe
the above statement is true if it is absolutely necessary but because of
the expense of doing the test I believe they would prefer not to.]  If
you would like to contact the lab their info is:

Center for Celiac Research (CFCR)
UMAB Bressler Research Building
655W. Baltimore St., Rm. 10-049
Baltimore, MD 21201
Tel: 410-706-3734
Fax: 410-706-1669

Mary Thorpe has been my lab contact, she can be e-mailed at:
[log in to unmask]


Dr. Fine's EnteroLab gene test is only $150. The test results will tell
you if you have one or two copies of the gene.  If you are found to have
one, then you will know you inherited it from one parent (but you will
not know which one).  If you are found to have two copies, then you will
know you have inherited it from two parents.

That $150 was the best money I have ever spent on myself.  Because of
the information I got from the test, I don't have to undergo biopsy to
know that I need to be GF for life.  My response to the gluten challenge
& the GF diet plus he genetic information are enough to clinch the
diagnosis.  I strongly encourage you to go for it.  Incidentally, most
labs charge between $300 & $400 for similar tests.

Dr Fine's website is :

www.finerhealth.com


From what I've gathered by talking to Dr. Fine's staff and an email from
Dr. Fine is the following:

his rates are posted on his website. You can get the gene test only, or
along with other tests (www.enterolab.com, I think)

If you have NO gene for CD, you CANNOT rule out CD.  That is exactly
what I wanted to do, but Dr. Fine emailed me and said it will NOT rule
out CD.  I'll see if I can find the email and forward it to you.

It will tell you if you have the gene from one or both parents.

If the test is positive, it can only tell you that you are genetically
predisposed to having CD, not whether or not you have it at the present
time (or even whether or not you will have it in the future), as it can
be "dormant" for many years until triggered.

Dr fine offers a gene test for around 200 that lets
you know if you have 1 or 2 copies of the gene.  This
lets you know if you got it from both parents.  The
gene test at specialty labs is more complete for
closer to 400, but only looks for presence of the
gene, not how many copies.

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