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Thanks  to everybody who has been replying.  You're response has been
overwhelming and very helpful.  I have a few more questions which would
be helpful for my research.  You may send your reply to me a
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Thank again.
1)how do you feel about having this disease?
2)what some current issues regarding this disease that you are aware of?
3)what are the  issues or aspects related to living with this disease?
4)what are some issues or aspects related to the care and treatment of
this disease?
5)what are your views of health professionals who work with you regarding
the care and treatment of this disease?
6)what do you expect for the health professionals caring for you and
treating the disease?  Especially the nurses role.
7)can you make a recommendations for the nurse regarding your expectations?