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From:
Donna Hudson <[log in to unmask]>
Date:
Thu, 6 Jun 2002 22:39:42 -0500
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<<Disclaimer: Verify this information before applying it to your situation.>>

21.  I was 28 before I was diagnosed.  But my mom had
problems with me since birth.  I had terrible
projectile vomiting.  The doctors were not concerned
although my mom was.  Then, as I grew, I had the
bloated belly and was very very thin.  Everyone tried
to fatten me up with cakes and pies and icecream.  As
a young teen I went to the doctor about gaining
weight.  The doctors would actually laugh at me.  Now
I was by no means slender, I was a walking skeleton.

Anyway, my point is that I obviously had CD my whole
life (oh yea, I didn't add all the hospital visits for
my stomach pains that was "in my head") and yes, it
started with projectile vomiting.  My brother has one
son and I have one daughter.  Neither had projectile
vomiting to be concerned with, and neither show signs
of CD.

22.  Two of our three boys had projectile, and other, vomiting up to 13
mo. old.  The only one that did not was our celiac, who made up for it
in other ways.  They were all breast fed, and no special diet was used.
None had surgery since they were a good size and continued to gain weight.

23. I was diagnosed with Celiac as an infant and had the projectile
vomiting.  I was put on a diet of skim milk, cottage cheese and bananas
at the age of 1-1/2.  Don't know for how long, but I do know that I was
on a very restricted diet as a child.

24.  it sounds like your clients had pyloric stenosis, whcih tends
to run in males and in families and as far as I know (I've read a fair
amount about it) is unrelated to celiac.

25.  Both of my twin sons (fraternal) had projectile vomiting.  No they
did not have surgery and changing their diets did not stop the
projectile vomiting.   By the way, soy does not have the smell of sour
milk, but it stains much worse.  I cannot remember how long they had it
but it was at least 8 months. They both are celiac and I put them on soy
milk soon after birth.  Mother diagnosed, not doctor or biopsy
diagnosed.  Didn't have a name for it 30 years ago.  Just muddled
through and discovered what gave them diahrrea.

26.  My daughter, who was later diagnosed with celiac disease, had
projectile vomiting from the time she was taken off breast milk until it
just stopped about 8 months later. We changed her milk many times and
she took lots of meds but one day it just stopped, then the chronic
diareeah started. She was 8  yrs old before she was diagnosed with CD.
During those 8 years she went from one reflux drug to the next and
nothing seemed to help for very long.

After 3 months on the gluten free diet, the reflux stopped. :)

27.  These aren't specifically answers to your question, BUT I know two
families locally whose infants suffered from severe reflux.

Family 1, one child with reflux, mom stopped supplementing with
formula [went to just breastfeeding], and baby did great.

Family 2, 1st child diagnosed with reflux, put on special formula,
improved but still was always considered to have "sensitive
digestion". Child was later diagnosed with celiac disease.

2nd child breastfed, had reflux. Mom took gluten out of HER diet, and
baby was fine afterward. Child also later diagnosed with celiac.
Similar to that, my infant daughter was perfectly fine, NEVER spit up
during her first 4 months, while I was GF [I don't have celiac, but
husband and 2 other kids do]. I added gluten to my diet at 4 months,
she started vomiting majorly each time she nursed. Not projectile,
but SERIOUS amounts. I went GF again, and it stopped.

I'll be interested in seeing your theory on this... personally, I
suspect that in many cases, reflux/projectile vomiting in infants is
caused by an allergy/intolerance, NOT just an issue of physiology.

28.  My daughter Alix, aged almost 10, is the celiac in our family --
the only one we know of for sure. She had an episode of projectile
vomiting at age 2 weeks. She was subsequently diagnosed with reflux and
we were told that the valve at the top of the stomach was
underdeveloped, that it would stop by the time she started walking. The
best treatment, we were told, was to thicken her formula. Rice cereal
seemed to make her constipated; we switched to barley and oats. I am not
convinced that it had any effect whatsoever on the spitting up and
vomiting, other than to make it harder to clean up

29.   I am a Celiac as is my daughter.  Our son's biopsy came back
negative but with the notation that orientation of the tissue made it
difficult to read.  That son (in his 40's) has no symptoms but until he
was about three years old, he had a bad case of projectile vomiting.  We
kept changing his milk and tried everything.  His baby pictures show him
always wrapped in a plastic apron.  I was diagnosed at age 70, so he may
yet develop Celiac.  My daughter did at age 40.

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