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I know a lot of people were anticating this summary, and I'm afraid it will be very disappointing.  Basically  the responses ranged from "are you crazy? let the poor kids eat regular food" to "avoid gluten as long as possible why take the chance?"
  Since I really didn't get much help from that arena, I called the U of Chicago Celiac Center.
   
  The gist of that call was that 
  1) they do not put any credence in the stool test (please do not write about how wonderful it is - I used it remember!, this is their opinion)
  2) Get my 9 month old gene tested.  If she doesn't have the gene great. If she does,let her eat gluten and just do regular testing (they recommended starting at age 2 and every 2 years there after unless she shows symptoms)
  3) For my older two: find a good ped. GI (hence my earlier post today) and do a gluten challenge supervised by that doctor.  They did not give me any clear idea on how much or how long to give them gluten, just said talk to the doc about it.  Their point was that it is much easier to control the situation when they are young than when they are older so it is better to do it now.
   
  So what am I going to do? 
  1) find a good GI for my older two and discuss the challenge with him.  I am very nervous about doing it with my older son who tested borderline positive.  But I admit that I have always felt ambiguous about that test b/c he rarely ever ate gluten (maybe a handful of cherios or crackers at playgroup once a week was the extent of it)
  2) I'll get my 9 month old gene tested.  If it's postive, I'm going to wait until she's at least 2-3 before intro'ing gluten. I remember reading somewhere that by then their system is better developed and less likely to end up with celiac disease.  I figure why take the chance at that age?
   
  Hope that helps for all you looking for guidance.  I'll post an update after I see the GI doctor (which will probably be awhile, those appts usually take forever to schedule!)
   


Theresa Huss
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