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Subject:
From:
Fran Gillespie <[log in to unmask]>
Date:
Sat, 22 Aug 1998 21:13:48 -0700
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<<Disclaimer: Verify this information before applying it to your situation.>>

Gayle wrote: Page 24 of the (CSA) announcement is entitled Basics for
the Gluten-Free Diet. One of the categories on that page is entitled
"Grains to Avoid" and there, printed along with wheat and barley, etc.
it says "quinoa...millet...buckwheat... amaranth."

If CSA/USA can't pay attention to the scientific research that says the
those grains are free of gluten, how can I believe that the other
information from their conference is valid?

Celiacs of the USA should get their data straight and work together.  I
urge anyone who is going to Connecticut for this conference and anyone
who is a member of this organization,  to try to get their leadership to
update their data <snip>

>>>This has been a strange situation-- all Celiac organizations are not
in agreement about what grains are safe. I always thought "how hard can
it be" to establish, scientifically if the grains contain the offending
protein molecules that celiacs can't handle???

Then there are the gray zones..... like Oats, for instance.... maybe
Oats in & of themselves are OK, but because of crop rotation (growing),
and harvesting practices it's highly likely you will get some kind of
cross contamination.

I took a quick look in the "Against the Grain" book, & Quinoa is listed
as "the jury is still out on this one" "the box says gluten free, Celiac
Disease Foundations says yes (GF), The Merck Manual says no, and so do
the people at CSA".

CSA does do a lot of good work too, so in order to be fair, let's ask
them to please make a presentation "officially" on the list, what
information thay have obtained that caused them to declare Quinoa
unsafe.

Fair enough?

Fran

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