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Hello,

Here is the feedback I received regarding a "loopy colon".

I have heard of so called "loopy colons" being a genetic thing. I would make

sure you are watched carefully for obstructions, etc. as you get older.

First of all, let me say you have my sympathy for not having been fully
sedated, as I have woken up partially during each procedure.
My colon has been formally reported as a 'long, tortuous' colon.  (I am 5'2
and petite and young, so when I initially read this I was ready to slap this

GI MD!)  This dr. also never dxd my celiac, he insisted it was gall bladder
, ibs and nerves.  (He was Harvard trained, go figure!).
My next GI, who is more on the ball with this, said that most persons with
CD have tricky, long  and unusual colons due to the fact that for many years

we have not been fully digesting foods and thus the colon has grown and
evolved within us to accommodate the extra bulk etc.  I do not know if this
is true, but when I went to him with my files (I was self diagnosed and went

to him for confirmation) he was not surprised to read  the offending
passage.  After the scope, which I woke up during due to the tricky nature
of my colon, he said it was everything he expected and more.
Short of a resection surgery which is done ffor folks ith real bad problems
like cancer or divreticulitis, I would just ignore it .
As for my condition, I am jus t glad that I am not a celebrity and that the
tabloids never got a hold of my records!
Hope this helps and if nothing else, lets you laugh.
PS...My brother, who is not celiac, but suffered with terrible food
allergies for years in childhood and nearly died from intestinal problems as

an infant, has a tricky colon with 'kinks' in it where food lodges and
inflames, and thus was told by his md to be on a good leafy grean, high
fiber diet to keep things going.

I was given 100 mg of demerol during the colonoscopy and the pain is very
bad my colon was nice and pink i watched on the tv until the pain became
unbearable . I had many surgeries for small intestional obstructions before
going gf and none after.

I have read books about this problem and seen pictures of twisted loopy
colons. What I've read is that it is due to a lifetime of poor diet and poor
elimination. Colonic irrigations might help along with a diet of raw
vegetables and fiber

 It's normal for the small intestine to be loopy.  You have yards and
yards of colon that fit into your abdominal space, and it loops back and
forth all over the place.

I also have what my doctor called a "tortuous colon."
When he did an endoscopy and colonoscopy back-to-back under sedation, he
did it with "Versed" -the stuff based on valium plus an amnesiac - IV,
and Demerol - or the equivalent of these in IV form.  He said I yelled
"ouch" once, but not other problem.

He used a child-size scope for the colonoscopy - one that is very
flexible.  It is less painful.
The endoscopy doesn't bother me.

Hey, as a med student here is an anatomical possibility: adhesions. You
have connective tissue anchoring your intestines to the back wall of
your body. It is *very* common for this connective tissue to get
inflamed/stick together/etc, especially in persons with GI tract
disorders and most of the time once you get an adhesion, there is no way
for it to get "unstuck" without the appropriate body work. Beyond that,
most people don't even know they have them! Having connective tissue
from intestinal loops not necessarily next to each other adhered
together could most definitely cause such a thing. I personally have had
a great number of adhesions (I have deep tissue body work done to help
release them) twising my bowels in the past. The more bowel irritation
and inflammation you have, the more adhesions you will have. I'd be
happy to answer any questions for you :)




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