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Subject:
From:
Craig Marian <[log in to unmask]>
Date:
Wed, 5 Feb 1997 07:07:25 +1100
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<<Disclaimer: Verify this information before applying it to your situation.>>

(I am submitting this on behalf of a very good friend)
Her name is Nerida.

Could you please advise me of any specialists/researcher in this field
that are in Australia.

I am a 33 yo mother of five children and we all suffer from varying
degrees of inborn errors of metabolism. Our present diet is Lamb, Potato
and Pears. All other foods trigger symptoms ranging from migraine,
cognitive dysfunction, irritable bowel syndrome, malnourishment, chronic fatigue
syndrome, joint/muscle pain, behavoural disturbances, failure to thrive
and infections eg. ENT and Sinus.

Scale of severity: 1-5 (5=most severe)
Mother = 3
Child 1 (F 14yo)=3
Child 2 (M 12yo)=5
Child 3 (F 10yo)=5
Child 4&5 (F twins 6yo)=4

Child 2 & 3 may have hepatic and intestinal damage due to initial diet
experimentation until appropriate help was found. Child 4 & 5 have
always been on controlled diet other than controlled food challenges
which were unsuccessful.

When diet is strictly maintained there are no abnormalities detected and
they grow and develop normally. Diet control now exceeds TEN years.

We have been informed that we have found the cure but nobody seems to be
able to tell us what we are curing. I am looking for someone to be
referred to with regard to establishing exact diagnosis.


Thanking you in anticipation of assistance.

Craig Marian
Email:[log in to unmask]

for Nerida

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