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Dear List Mates:  As always your input is wonderful.  The message  
below sums up everything and gives a link to a webpage that explains  
everything in detail.  I heard from several people with DH and found  
out that iodine indeed aggravates the condition.  "Iodine is a known  
trigger for DH blisters, but is not the cause."

If you have DH or Duhring's Disease (both names for the same disease)  
you are a Celiac.  You can be a Celiac and not have DH, but you can't  
have DH and not be a Celiac.

Of course the main problem is gluten.  Isn't it always!?  Gluten = Evil.

It took anywhere from 3 days to a year for the rash to clear up, once  
the individual was GF, depending on the individual that responded.     
It was also suggested that many knew they must have accidently  
ingested gluten OR overloaded on iodine, as occasionally the rash  
reappears and disappears again.  One noticed that when she went on  
vacation and ate fish everyday for a week, her rash came back  
momentarily- for her the overload of iodine in a short period of  
time, seemed to be the issue.

> Sure sounds like you had DH as a child. It is horrible that it took  
> so many years to diagnose you. From what I have heard DH can take  
> over a year to resolve. If you are having an outbreak please look  
> for possible hidden gluten. Dapsone can help with the skin  
> eruptions, but it does nothing for the internal autoimmune reaction  
> to gluten. Dapsone cannot take the place of a GF diet.
>
> As far as iodine http://www.celiac.com/st_prod.html?p_prodid=179

I was also told: "The only way to know for sure if you have DH is to  
have the blisters biopsied. "  However, I have seen enough doctors of  
late and am certain at this point that this indeed is the disease I  
was diagnosed with when I was 9 years old.

Thanks so much,
Yvonne
http://www.yaarglass.com/

‘Without art, the world would be a blank piece of nothing.’’    
Comment from an Elementary school student



On Oct 1, 2007, at 1:37 AM, Yvonne wrote:

>
>
> After doing a lot of reading, I am convinced that I have this Celiac
> related rash.  Started when I was 9 years old ( it took them 35 years
> to finally dx me with Celiac!).  It is also called Duhrings Disease
> if I remember correctly.
>
> In any case, my question:
> I was told (at 9) after having a horrible rash, bilateral, knees and
> elbows, that I had a rare disease ( 1 out of 100,000).  I was told I
> was stranger still as I was way too young for the disease- that it
> was supposed to only happen in adults.  In any case, I have no memory
> of what the doctor called it, but he described it as an intolerance
> to iodine.  I was put on a mostly iodine free diet ( you need iodine
> so I had to have some!) and after a couple of months the rash started
> to slowly disappear.  I stayed on the diet for about 2 years and then
> slowly reintroduced the foods.  I eliminated quite a long list of
> foods, as I remember some of them were:
> fish/seafood
> tomatoes
> bananas
> peas
> sausage
> chocolate.....
>
> Is there another disease that involves iodine as a food allergy/
> intolerance?  Or am I correct that it was DH way back then?  The rash
> has returned (a couple of years ago) and it's on my elbows and
> scalp.....
> so another question:
> Once I am GF, how long on average does it take for the rash to go
> away?  Should I eliminat iodine again?
>
> thanks,
> Yvonne
> "Never go to a Doctor whose office plants have died" Erma Bombeck
>


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