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Other interesting and informative replies to the question about why 
people resist testing for celiac:
Additional ideas & experiences:

1. My brother (who has been dx with DH) will not be tested as he 
changes jobs often and he does not want the dx in his medical records.

2. Although (they) appear to be symptom-free, my sisters urged their 
doctors to order the blood test.  Thankfully both came back negative. 
They were glad for that but said "ouch" over the out-of-pocket 
expense for the test that wasn't picked up by their insurance.  I 
think if they had known ahead of time that the test was going to cost 
them upwards of $400, they would have held off on having it done 
until they developed symptoms (hoping that wouldn't happen).

3. Lack of health insurance.

4. I think anything related to "bowel" problems is to be avoided 
like.......well........poop.

5. People are lazy.  Until they can see the long term effect on their 
health, they won't do a thing.

6. A very sad story from one list member, whose sister continued to 
lose weight after her cancer was in remission: resisted testing 
because "I don't want to have that disease, I have seen what you have 
gone through, I am too sick to deal with it." Finally she did get a 
diagnosis, was on a gf diet for about six months, gaining weight and 
feeling better, but the cancer came back and she subsequently died. 
The list member who contributed this story naturally wonders if the 
outcome might have been different had her sister's health not also 
been compromised by celiac.

......and a story about just how far into the sand a head can go:

7. I have a client who I'm close with so over the last 18 months of 
my new improved life, she's learned a lot about Celiac. I thought her 
interest was odd actually. Then one day she said she was sure her 
husband must have Celiac and asked me to send her websites where she 
could read the medical facts about it. I did and she then got him 
some gf beer. It didn't give him a headache like normal beer does but 
he didn't care for the taste. Now it's like oh well, I guess he 
doesn't have it. Only the husband has serious 'stomach' issues and 
always has. They take two cars to the same events because he'll 
probably have to go home early to spend time in the bathroom. But oh 
no - he must not have it......because he doesn't like gf beer.

All of this leads to yet another question: what's our best approach? 
A few people took the original question to the next step. That 
summary is in my final installment.

Mary B.
NYC

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