<<Disclaimer: Verify this information before applying it to your situation.>>
Dear list mates,
The following are the posts and suggestions that I received on the above
subject. Thanks to all of you, some I have or will contact directly. Jim
D. CO. USA
1. I would suggest you to ask your questions at this other excellent GF
forum:
http://forums.delphiforums.com/celiac/messages
2. A lab located in SanDiego that does the bulk of celiac screening (the
blood screening).
Get the blood drawn, and sent to them. Have the Dr. office charge the
insurance, and whatever insurance didn't cover, they would then cover.
3. Someone on the LISTSERV gave me the information. The number to call at
the University of Maryland for possible free blood screening is (410)
328-6949. I believe that this survey has been completed.
4. Go to <http://www.celiaccenter.org>www.celiaccenter.org which is the U
Of Maryland celiac center by Dr. Fasano
5. Celiac screening for first degree relatives of a recently diagnosed
celiac is standard medical practice. Because of this it should be covered
by the family's insurance. Now every insurance plan is difference so I
cannot say absolutely that this would be covered. But, after working in
health benefits for 15 years, my best guess is that it would be covered.
Entero labs in Dallas does not accept insurance, but a number of people
have been reimbursed by their insurance companies for the fees they paid to
Entero labs. So, if this is the lab they are using, I would recceommend
that they speak with the insurance company to get preapproval. You would
not want to spend all that money and then not get reimbursed.
6. The only organization that I think is still doing blood screening is
Childrens Hospital at Sunset andVermont in Hollywood (Los
Angeles). Ask for Dr Pietzak's office
7. I'll be doing a free screening May 17, 2003 here in San Diego, if you'd
like to be part of our 2nd International Walk/Run for Celiac Disease!
Might be worth the airline tickets! (Not to mention a gorgeous walk/run
around Mission Bay....)
Danna
****************
Founder, Raising Our Celiac Kids (R.O.C.K.)
Author: "Wheat-Free, Worry-Free: The Art of Happy, Healthy, Gluten-Free Living"
Author: "Kids with Celiac Disease: A Family Guide to Raising Happy,
Healthy, Gluten-Free Children"
<http://www.celiackids.com>www.celiackids.com
www.wheatfreeworryfree.com (coming soon)
"8. I am the study manager for a celiac disease study. The purpose of our
research is to study families with two or more individuals with celiac
disease to increase our understanding of this condition and to determine if
there are familial factors associated with its development.
Do you know if there are other members of your friend's family that have
been diagnosed with celiac disease (siblings, parents, etc)? If there are
at least two formally diagnosed individuals in the family, we could enroll
his children into the study and provide antibody testing.
Thanks,
Linda Steele
Epidemiology Division College of Medicine University of California
Irvine 224 Irvine Hall Irvine,
CA 92697-7550 Tel: (949)824-5603 Toll-free: (866) 356-9962 Fax:
(949)824-4773
e-mail: [log in to unmask]
9. James, Univ. of Chicago just had free screening last Saturday
(11/9). You could call them at 773.702.7593.
-
10. U/Chicago Celiac Program had a free screening in Chicago last
weekend. Might
be able to contact them & see if blood could be sent since it is a family
with so many children. They do the tTg only. Email there is
[log in to unmask] (Michelle Melin-Rogovin)
Thanks to all. Jim D. CO. USA
->I
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