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Subject:
From:
Dawn Dutton <[log in to unmask]>
Reply To:
Dawn Dutton <[log in to unmask]>
Date:
Wed, 19 Mar 2003 13:58:41 -0500
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<<Disclaimer: Verify this information before applying it to your situation.>>

First of all, thank you to everyone who wrote me!!  Below is my summary
for the request for doctors in the Boston area.  Just to recap, here's
part of my original post to the group:

> My brother has very similar skin symptoms to my sister=92s.  He=92s
been =
> in
> classic celiac denial (if I don=92t get tested, I don=92t have it!!) =
> since
> we were diagnosed.  We are encouraging him to have his skin sores
> checked with a dermatologist as well.  I=92d like the name of a
> dermatologist that is familiar with DH in Boston.
> =20
> My brother has two beautiful young daughters (2 =BD and 6 months) who
I
> *really* hope don=92t have celiac.  I=92d like to give him the name of
=
> an
> *excellent* pediatric GI doc (who is familiar with CD) in the Boston
> area.

SUMMARY
1.  I got a suggestion to check with local support groups (always a good
idea!)

2.  I didn't get a single recommendation for a Dermatologist in Boston
familiar with DH. If you read this and you know of one, please send me
email.   It's never too late!  I did get a recommendation for a GI doc
though:

Ciaran Kelly, Beth Israel Hospital
"Adult GI celiac expert in Boston- Ciaran Kelly, Beth Israel Hospital"
______________________


3.  Pediatric GI doc in Boston familiar with celiac:

Laurie Fishman, Children's Hospital in Boston
"Laurie Fishman is an excellent pediatric GI doctor. She works out of
Children's Hospital in Boston. She's been taking good care of my celiac
grandson."

Alan Leichtner or Athos Bousvaros, Children's Hospital,
Boston
"Pediatric GI: Alan Leichtner or Athos Bousvaros, Children's Hospital,
Boston. Children's Hospital has an excellent celiac support group for
families too."

Verhave, Boston Children's Hospital
"My daughter's doctor (along with the entire group) is with Boston
Children's Hospital, his name is Verhave. He is great, and the team is
wonderful. Good Luck,"

______________________

4.  I got a link to information on DH:  "Keep in mind that since you
have been diagnosed and will be following a 100% gluten free diet, your
DH should begin to clear up. You may need additional medication to get
it started and/or to help the itch.  DH victims are sensitive to iodine.
Some info. is available at"
http://www.clanthompson.com/day2day/chondroitin.htm




Dawn @ the Jersey Shore

*Please provide references to back up claims of a product being GF or not GF*

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