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From:
IK+LJplant <[log in to unmask]>
Date:
Sat, 15 May 1999 20:42:54 +1200
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<<Disclaimer: Verify this information before applying it to your situation.>>

Thanks for all your replies to my query.  At least here "downunder" I now
don't feel like the hypochondriac many GPs/Specialists make me feel.  I
myself know and understand the correlation between my diet/gluten exposure
and the migraines I suffer, but I find many NZ doctors are ignorant about CD
and to be honest couldn't give two hoots about learning more about it.
Luckily my own doctor of course knows the level of my interest in learning as
much as I can to help inform others in New Zealand of their condition.  We
only have 1 CD support group in NZ, so passing knowledge between fellow
sufferers is slow and infrequent.  I have been asked to be the "Net surfer"
for our CD support group, so a few of you will unwittingly visit New Zealand
via your posts to the webring...

Here are some of the replies I received in shortened form...

 ***

I suffered with migraines for 15 years, had 2 CT scans and other tests, and
tried many pain medicines without relief.  Since my diagnosis in January, and
being gluten free ever since I have not had any headaches at all.  This is
amazing to me, as I had been eating Ibuprofen like candy for over 10 years.
They thought I had an ulcer due to the ibuprofen, thats why they did the
biopsy and found I had celiac!

Karen...

Lorraines Note:  This case is almost identical to my own method of
discovering CD!!

***

I also get terrible headaches which coincide with food reactions.  No longer
do I eat gluten or even have an "accident".  My celiac daughter is also
plagued with chronic headaches.  If it were not for Fiorinal, I don't think
either of us would have lived through this illness...

Leslie from Atlanta

****

It can sometimes be a part of the synmptoms of celiacs ingesting gluten or
MSG, or a litany of other triggers.  Celiacs may also have them independent
of the disease.

Vance

****

We have a strong history of migraines in the family and my 10 years old son
who sjuffers from them also has Celiac Disease.  I felt they may be connected
to Celiac.  He used to \get the visual aura before the headache, but hasn't
had that part of it since his diagnosos of Celiac 2 years ago.

Mary
Wilwaukee, Wisconsin

*****

You will find that anything in your life can be associated with celiac
disease.  My experience with migraines came after I hit my head.  The doctor
told me I was getting migraines from this.  He put me on medication for 26
years.  When I was diagnosed with Celiac I weaned myself off the medication
against his wishes, and gradually my migraines went away

Cindy
New Jersey

******

The best medical site for Celiac is
    http://www.mayohealth.org/mayo/9810/htm/celiac.htm
It is the Mayo Health Clinic in Rochester, minnesota

from
[log in to unmask]

*****

I have not been diagnosed Celiac, but have been a lifelong sufferer of
migraine.  When I went GF I found that my migraines disappeared, and only
reappear when I slip up.

from
Mary Thorpe

*******

There is an excellent article entitled "Detecting Celiac Disease in Your
Patients" by Harold T Pruessner.  I dont think he mentiones migraines, but it
is well known that with a gluten accident, they sometimes occur.  I never had
a migraine until I developed CD after surgery.  Here's the site"

    http://www.aafp.org/afp/980301ap/pruessn.html

Cecilia Vohl

*****

I am not a diagnosed celiac, but have discovered that the migraines I have
gotten were tied to gluten.  When I have gluten I get a headache as well as
the usual gastro problems.

Anne Washburn
******

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