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From:
Juanita Heidt <[log in to unmask]>
Date:
Tue, 13 Jun 2000 13:13:08 -0400
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<<Disclaimer: Verify this information before applying it to your situation.>>

Hi and thanks to all 25 of you who responded to my question.  Most of you
unfortunately, could not help me with exact costs but agreed that the costs
were very high and $35/month were inaccurate, most felt it was in the
$100/month vacinity.  I am not sure if I got anything to really go on for
the costs, but will probably just keep closer track of how much I really do
spend.  I feel the Alberta Dieticians guide is off track as to how much it
does cost a celiac to eat.  The letter the dietician wrote for me also only
spoke of my daughter's special diet in regards to "flour".  There was never
any mention of yogurts, peanut butter, salad dressings, puddings, etc, etc,
etc, etc, that celiacs must watch.  My daughter is EXTREMELY sensitive so
we must watch everything carefully and they just don't seem to be aware of
that - that is what I have found to be the most frustrating part.  The
money really isn't the issue for me, the point I am trying to make is that
in Alberta the funding is there to use (I think - I haven't actually seen
the $$ yet) and I feel that it is a medical concern and I should access it
if I can.  If I can't get the money, then I will still feed my daughter
what I have to, but knowing that I can get a bit of help will be less of a
burden on us.  I never meant to sound greedy or that this was the end of
the world, I just am trying to do all I can for my daughter.  Thanks to all
of you who agreed with me and encouraged me.  Only one person felt that
they would never consider accepting money for their child as they do not
see it as a disability, all the more power to that person.  Thanks again -
you are all so wonderful and caring and I have learned so much from this
list, it is amazing.  I am sure I could write a book on celiac and it would
be much more accurate than what I have found out from the Professionals I
have talked to.  It is your experiences that are invaluable.  Thanks again.

Juanita in Lac La Biche, Alberta

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