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Hi-
Thank you for all the wonderful and thought filled answers - their appt is
the end of June - my daughter was advised that her son should be eating
gluten 6 weeks prior to the appt.  Below are the summaries of the answers I
received - 
Thank you all again  - 
A few questions:
1. If you have a young child - under 2 - who was diagnosed how was the
diagnosis made? This baby does not consume much wheat - I don't know =
about quantity of gluten - so not sure how.. effective the blood tests would
be....?
Many said go through Enterolab - many toddlers have negative blood work but
positive stool testing.  
You have to be eating gluten to test positive with blood tests
Son diagnosed blood tests at 13 months - followed by biopsy at 15 months
No child with a celiac in the family should have gluten until they are 1
year old
Baby may be getting gluten through breast milk
Do blood tests and an endoscopy
Take the baby off milk, soy and gluten for three weeks - if no change there
is another reason other than celiac
Blood test unreliable for kids under 2
Blood test negative - biopsy showed villous blunting
Had our child gene tested when she was 5 months old - she tested positive -
so when she started falling off growth curve and her iron was a bit low -
had blood work and endoscopy
one mother has 2 sons both symptomatic - neither tested for celiac - she
eliminates gluten and says both sons are doing well
 
 
All say early detection is the best - many said their children had motor and
speech delays but once on the GF diet have done well....many are now healthy
adults - all but a few were supportive and offered phone numbers for more
information.  Thank you to the many GIG support group leaders who offered
help.  I sent these emails to my daughter - her plan now is to introduce
gluten into this child's diet and see what the pedi GI at Hershey has to say
(one person did go to Hershey for her child's dx - but it is a different
doc).  I think the plan will be endoscopy.

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