<<Disclaimer: Verify this information before applying it to your situation.>>

This is a continuation of the summary on the question of whether to complete genetic testing for CD. Again thank you for your responses--responses were shortened for space reasons.

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It is no wonder you are confused. So is the medical system and all of the doctors. It depends upon who you talk to and what you read and it changes everyday. I believe that if you have the genes you had better not eat gluten as you will be doing damage even though you don't appear to have any symptoms. Some symptoms are sneaky and one doesn't even know they are feeling anything abnormal. If you get an official diagnosis it will be in the medical records and you are both in danger of never being able to get medical, life, 
long term insurance, etc. If you desire further diagnosis including gene testing, go to http://www.enterolab.com for the best testing  in the world. Also I wish you would read  his essay as follows to perhaps clear up any questions.
Scroll down after clicking this site until you come to "Don't Wait Until the Villi are Gone". Learn as much as you can from these studies. These are some of the finest reseachers in the world. Latov/Hadjivassiliou, etc.
http://brain.hastypastry.net/forums/showthread.php?t=920

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The reason you can be positive for the HLA-DQ2 and/or DQ8 and still not develop Celiac Disease is because the disease is a multiple gene disease.  It's  known that  almost 100 % of the people with the disease have at least one of those genes, so the medical world ASSUMES that if you don't have at least one of those genes the chances that you have Celiac disease is practically zero. One the flip side, just because you have one or more of the genes associated with Celiac, that does not mean you have developed the disease.  There are MANY diseases associated with those genes.  
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A person can have CD without any genetic markers and yes your daughter can have children with CD she will need to know then that any child she has should be gf from birth on then in their teen rebelling yrs that is soon enough to know if the child or children have CD.  I wouldn't have her gene test because it can be used against her with insurance.   This is the best illness to  control if early enough there are much worse ones one can get. I really admire those that self diagnose  at least they stop suffering.
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You can carry one or both of the genetic markers (DQ2 and DQ8) and NEVER have Celiac Disease.  CD must be triggered.  There are a lot of theories out there regarding the triggers (viruses, pregnancy, surgeries, etc.), but it is not just from eating gluten.  Supposedly 30% of the population walks around with these markers, without ever developing the actual disease. The markers are only an indicator of whether or not you are predisposed to develop CD.  The markers are not a guarantee you will actually get CD.
Hope this helps.  As you know, the GF diet is a toughie and I would never have a kid on it unless they really needed to be.  Think of all the years ahead of school functions, party food etc.  If you don't 100% need to be doing all that extra planning, why do it? 
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The 2 DQ genes that have been identified are ASSOCIATED with CD, NOT causative.  It is extremely rare that someone would have both DQ2 and DQ8.  Usually people have one or the other.  The majority of people with CD have DQ2 (~90%)  DQ2 has 2 alleles (or 2 halves) so it is possible
that someone did not inherit the entire gene from one parent, the possibility also exists that the person inherited different halves from each parent.  Approximately 30% of people in this country have one of these 2 DQ genes; obviously not all have CD.  Also, there is a small, but
significant number of people who do have CD and do not have one of these 2 DQ genes - obviously there is still much more to learn.  If one can identify which gene is carried in the family and certain members turn out not to have that gene, then one can relax about worrying about those individuals developing CD.  If someone does have either gene and has ANY symptoms - of course there is a huge list - then further testing is highly recommended (blood & biopsy). 
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The genetic marker is present in a large percentage of the population. It doesn't mean that you have CD, however, it just means that you have the potential to someday develop it. This may or may not happen. If you don't have either genetic marker, however, you can't have CD. Your daughter, if she has one or both markers, will be able to pass the markers on to her children.
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As I understand it, one can have both genes but still not have CD.  However, at any time,something may trigger the onset of the disease and then the person would have it for the rest of his life.  If one does not have one of the genes, he will never get CD.  There are also questions about DQ1 and DQ3 genes which may also be ivolved in celiac.  There is still much to be learned.  I do believe that anyone who has a blood relative with CD should be tested, but like your family, not all of my relatives want to find out.
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