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Tue, 25 May 1999 09:11:46 -0700
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<<Disclaimer: Verify this information before applying it to your situation.>>

With more research and more help from several people here is the final (I
hope) summary of reliable labs for testing for celiac. So happy intestines
to all :)

"In the scheme of medical expenses, the gluten antibody tests are
relatively inexpensive, coming in at under $200.00 for the entire panel.

Currently, these tests are performed at five or six locations in the US (call
for information on how to prepare the blood sample)."

1) IMMCO Diagnostics, 963 Kenmore Avenue, Buffalo, NY 14223 716-876-5672,
1-800-537-TEST (8378), [log in to unmask]

2) Immunopathology Laboratory, Dept. of Pathology, 5233 RCP, University of
Iowa Hospitals and Clinics, 200 Hawkins Drive, Iowa City, IA 52242, phone
(319/356-2688/8470)

3) U. of Maryland at Baltimore (Baltimore, MD) 1-410-706-1997:  Pediatric
Gastroenterology & Nutrition Laboratory, UMAB/Bressler Research Building,
Room 10-047, 655 West Baltimore Street, Baltimore, MD, 21201, Attention:
Karoly Horvath, MD, or Athba Hammed, Research Assistance.  Phone (410)
706-1997 or Fax (410) 328-1072. Baltimore is where the 3-year blood study
is being done for celiac disease and their first degree relatives. Dr.
Fasano and Dr. Horvath are very involved with celiac research there.

4) Specialty Laboratories, 2211 Michigan Avenue, Santa Monica, CA 90404,
phone (800) 421-7110, HTTP://WWW.SPECIALTYLABS.COM

5) Mayo Clinic =  Dr. Joe Murray now works there.
http://www.mayohealth.org/mayo/common/htm/index.htm

6) Prometheus, Inc. 5739 Pacific Center Boulevard - San Diego, California
92121, Tel: (619) 824-0895 / Toll Free (888) 423-5227 / Fax: (619) 824-0896:
The president of Prometheus wrote the following to me: The company is
completely focused on gastrointestinal diseases, with particular expertise
in Inflammatory Bowel Disease and Celiac Disease. We have, in my humble
opinion, the best option for Celiac testing.  In fact,
at the recent International Celiac Disease Meeting held in Marina Del Rey,
CA, Dr. Peter Green (Mt. Sinai Medical Center, NY, NY) described a case
where a specimen was sent to one lab, and came back negative.  Due to his
suspicion, he then had the specimen sent specifically to Prometheus, which
he uses regularly.  Result:  Positive.  And now, correlated with biopsy.

   In a nutshell, not all labs or all tests are the same. Prometheus worked
very closely with the leading clinical research specialists and pediatric
gastroenterologists to optimize their testing system, and then validated it
with their clinical specimen banks.  Elaine Monarch of the Celiac Disease
Foundation can confirm our focused efforts in this area, as can the
clinicians, like Dr. Green, who rely on Prometheus for the absolute best in
Celiac Disease serological assessment.
-vance

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