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Myers, Karen wrote;

> While I agree that Ayn brought up a good topic, I think we need to
> address another problem that Ayn brought up that has not been mentioned.
>
>  Ayn does not have celiac disease.  Her biopsy was negative.  I feel
> that Ayn needs to be discussing her problems with her doctor.  Abdominal
> pain of unknown origin and loss of friendships over this suggests
> something else to me.  I was told that biopsy is the ony definitive way
> to diagnose celiac disease.  If the biopsy is negative, you should look
> for other causes. I do not want to be unsympathetic to Ayn, but I am
> concerned that something else is the cause of her problems, and that is
> what needs to be addressed .

I just have to point out that what you write is NOT true! One can have
CD even if you've had a negative biobsy!!!!!! It all depends on how and
when the test is take and then it depends very much on the person
analyzing it, some are good at it others not.

For eg. if the doc. has told you that he is almost sure you've got CD
and than you have to wait two months or more before you can get the
biopsy-then you most surly have if not gone completely gf, at least
eaten less of it. This is normal, who wants to hurt oneself?

Then when the test is taken it can actually have been taken at spots
where the villi is undamaged, it happens! Or as I said the person who
looks at the test isn't experienced enough.

I don't have a "real" diagnose either but that doesn't bother me a bit!
My doc. said that it really looked as if I had it even though the tests
were negative and told me to go gf for minimum a year and see what
happened. Well, after six moths I felt better that i've felt in my whole
life! I could actually take the car and go shopping all by my self! Now
I feel even better 11/2 year on a gf diet. so for me there's no doubt!

And why someone else would be bothered about this, me not having a
"real" diagnose, I can't understand! Why tell them? Just say you've got
cd and that's it! If it makes one feel better that's what is important,
not *how* you found out about the disease!!!!!!!

Anna M