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From:
The Kavanagh Family <[log in to unmask]>
Date:
Sat, 13 Apr 1996 10:25:20 +0100
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<<Disclaimer: Verify this information before applying it to your situation.>>
 
HELP
Wanted - information - Is there a  connection between IgAN and Celiac Disease
 
I am a mother of 3 sons,who up to now knew nothing about medicine. That is
untill my son Niall age 15 and myself age 42 were diagnosed with IgAN in Dec.
1995. Since then I've spent hours on the Net trying to find some information
on this illness. No two Doctors here in Ireland seem to agree on the symptoms
of this disease.
 
WHAT I NEED TO KNOW.
(A) Celiac's have raised IgA antibody's -- People with IgAN have raised IgA
antibody's -- are the two disease's connected.
 
REASON.
My son niall diagnosed with IgAN in 1995 has had a very bad time this last
year with DIARRHEA, STEATORRHEA, PAIN, GAS, FATIGUE,WEIGHT LOSS (18
KILO'S)AND DERMATITIS HERPETIFORMIS.
HE HAD A BIOPSY -- WHICH WAS NORMAL --
SPECIALIST SAID "NORMAL BIOPSY. YOUR SON IS NOT A CELIAC".
But his health continued to decline, Niall became quite distressed. In Dec.
95 Along with the family Doctor we decided to put Niall on a Gluten and
Lactose Diet. At this stage Niall could not even tolerate yorget without
diarrhea ect.
 
The results have been just amazing. Not only did his celiac smyptom's improve
daly, (he's put on 3 kilo's) But there has been a significant decrease in the
amount of haematuria in his urine.
 
At this stage we decided to have the three antibody tests done on our younger
son lorcan. As he had almost died at age two (I breast fed him untill
then)due to diarrhea and other celiac  symptoms, (he went into a coma). The
doctor's at that time wanted to do a biopsy on him but We refused. As lorcan
had devloped Psychiatric problems i.e. panic attack's, sepration and sleep
problems, So we just put him on a Gluten free diet and his diarrhea went away
and he gained weight.
 
It seems we made a big mistake. We weaned him back on to gluten food's around
the age of seven.  NOW HIS RETICULIN IgA AND GLIADIN IgG AND IgA ARE HIGHLY
EELEVATED.i.e. POSITIVE.He is now to have a biopsy.
 
Question (b) what should I do if lorcan biopsy shows nothing.AS DID NIALL'S
Put him on a diet even though he has no smyptions at the moment?.
 
I do not want my son's to suffer as i have over the last 24 years.(I was
diagnosed with I.B.S. then age 18) Now I have IgA Nephrophathy, Partial
Epilepsy, Psoriasis, Fatigue, Muscle pain,BONE PAIN VERY BAD IN THE
HIPS.FLANK PAIN, Sleep and Visual distortions, I had bad headache's which I
now control with Homoeopathic Tablets (FEVERFEW 6X) By taking 6 of these a
day for 2 weeks out of every month I have stopped these burning headache's.I
now have a lot of these smyptions under control with a GLUTEN FREE DIET-
ESPECIALLY THE PARTIAL EPILEPSY.
 
SO IF ANYONE HAS ANY INFORMATION OR HELP. I WOULD LOVE TO HEAR FROM YOU.
WHAT WORKS FOR YOU. CAN ANYONE ANSWER MY QUESTIONS
NOTE -- (A)DOES IgAN CAUSE CELIAC DISEASE.
        (B)DOES CELIAC DISEASE CAUSE IgAN.
        (C)DOES AN IMMUNE COMPLEX DISORDER CAUSE BOTH.
        (D)IS THERE ANY CONNECTION OR IS IT JUST BAD LUCK TO HAVE BOTH.
 
I WOULD BE VERY GREATFUL TO HEAR FROM ANY-ONE ON THIS SUBJECT.
                                                             HELEN

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