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The Chicago Tribune’s recent articles on food labeling have alarmed the
celiac and food allergy communities. In response to the investigative piece,
the ACDA sent the following letter to the Chicago Tribune:     
 
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Dear Chicago Tribune Editor:
 
On behalf of the American Celiac Disease Alliance (ACDA) and the thousands
of Americans now affected by Celiac Disease, thank you for publishing the
two-part investigative series on food labeling and food manufacturing
oversight entitled “Allergy Threat: A Tribune Investigation” (Nov. 21 and
Nov 23, 2008).  

Mr. Roe’s thorough and well researched article exposes the serious and
sometimes life-threatening problems that can be caused by mislabeled food
products.  His article paints a compelling and very personal portrait of the
challenges people with Celiac Disease, food allergies and other health
concerns face each and every time they shop the grocery store aisles. 

Celiac Disease is the world’s most common autoimmune disease. Although most
have yet to be diagnosed, it is estimated that at least 1% of the U.S.
population has this inherited disease. Today, the only known treatment is
strict adherence to a gluten-free diet for life. 

On behalf of those living with Celiac Disease, the ACDA applauds the Chicago
Tribune’s efforts to raise awareness of the issue and to demand stricter
oversight of food labeling and enforcement by the U.S. Food and Drug
Administration (FDA). The Food Allergen Labeling and Consumer Protection Act
of 2004 (FALCPA) was an important first step in protecting celiac, gluten
intolerant and food-allergic consumers.  Mr. Roe’s article clearly indicates
that more stringent oversight is necessary. We agree.  
 
In January 2007, the FDA proposed a standard for ‘gluten-free’ labeling.
Under its proposal the maximum threshold level for gluten would be set at 20
parts per million (ppm).  When finalized these regulations will help to
ensure that individuals with Celiac Disease are not misled by incorrect food
labels and that they have truthful, accurate and easily accessible
information on processed food labels. 

Until this regulation goes into effect and FDA oversight is strengthened,
food-sensitive consumers will be left wondering what products they and their
families can safely consume. In the case of those with celiac disease, they
will also be questioning the safety of adhering to the gluten-free diet,
their only medical treatment. 

Andrea Levario, Executive Director
American Celiac Disease Alliance (ACDA)

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