<<Disclaimer: Verify this information before applying it to your situation.>>
Thank you to all who responded to my query. The first response I
received was an offer from an celiac-related commercial venture with
an established web presence who would be willing to host this
endeavor. Thank you, Russ! I later received another offer from
another person who is planning/designing a web site in the future.
First things first: I received 5 requests for Lily's Pie Crust
recipe. Happy Thanksgiving!
Local groups responding who publish their newsletters online:
DENVER: http://www.geocities.com/csadenver17/newsletter.html
TEXAS: http://www.alamoceliac.org publishes the recipes from the
newsletters online and generally breaks up the information from the
newsletter throughout the site
PITTSBURGH: http://www.pittsburghceliacs.org/celiac/news.htm (2
newsletters, 2003 and 04)
SOUTHERN ARIZONA: http://www.southernarizonaceliacsupport.org (listed
on menu as left)
Several of these sites hold information that can be extremely
valuable to smaller groups -- giving insights into how they run and
program their groups, as well as the nutrition/tips information they
provide. I'll be going back to the Denver site on a regular basis.
Several persons who responded from rural areas stated that (1) they
didn't have a local group and it would be great to read newsletters
from other groups, or that (2) they'd didn't even know that support
groups published newsletters! Another person noted the need for
newsletters to be small files (that's why I mentioned PDFs).
Dissenting opinions mentioned that some larger local groups depend on
income from dues (newsletter subscriptions) and felt that source of
funding would be in jeopardy. Another person misunderstood and
thought that I was referring to newsletters published by national
groups.
Finally, one respondent referred me to celiac.com, which in turn took
me to enabling.org, where the Sprue-Nik archives are the only
newsletters I've ever been able to find on that site. Because the
enabling.org site states that it was last updated Nov. 2003, and the
last Sprue-Nik newsletter was published in May 2000, these resources
aren't exactly current, which is the most important attribute of
newsletters. Also, celiac.com's newsletter isn't produced by a local
support group, but by a commercial source.
Janet Rinehart recently sent me a copy of the Houston group's
newsletter. This newsletter is produced with professional quality,
and would be worth subscribing to whether you live in the area or not.
Again, thanks to all who responded.
Susan Pieper
Las Cruces, NM
>
>I know there are many local celiac groups who publish newsletters
>for their members. Soon after I was diagnosed, I found that one of
>the most helpful, free, accessible sources of information was a
>newsletter from a faraway group. However, that group ceased putting
>their newsletters online a few years ago. (I still count the recipe
>for Lily's Pie Crust from that newsletter as one of my g-f
>treasures!) Even though a newsletter may have localized information
>such as shopping sites, restaurants, meeting info, etc., there are
>usually useful nuggets included within the newsletter that can apply
>to anyone.
>
>Is there anyone (a corporation, somebody with a big web site?) who'd
>be willing to host a site where local groups could submit their
>newsletters to share with others who may not have a local group
>nearby? If needed, I'd be willing to do the work necessary to put
>the newsletters into a format (PDF) that would be accessible to most
>computer users. (Probably 99% of all newsletters are originally
>created in a digital format of some kind anyway.)
>
>It could be a definite financial advantage for a group to distribute
>their newsletter online, saving postage in the process. If you have
>non-local advertisers, I'd imagine they'd be happy to get more
>exposure too.
>
>If you already publish your newsletter online, would you please send
>me the URL? Thanks!
Susan Pieper
Las Cruces, NM
*Support summarization of posts, reply to the SENDER not the Celiac List*
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