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Sun, 13 Jul 2008 23:50:36 -0400
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<<Disclaimer: Verify this information before applying it to your situation.>>

I'll include responses here and follow up with my experience in part 2.  Thanks 
again everyone.

-my md said to take the homeopathic remedy VERATRUM ALB 30C 2 pills under 
the tongue...it stops gluten reactions cold ....even old ones.

-Thank you for contacting The Centers for Disease Control and Prevention.
Please contact The National Institute of Health at 301-654-3810 for
information on this specific topic.   

-This is a shot in the dark but the symptoms and timing sound as though they 
could possibly be a bacterial infection which would be more serious and 
prolonged than a gluten reaction.  My son, also a celiac, just fought a battle 
with bacterial food poisoning.  The incubation period is 2-7 days so the timing 
would make sense.  He had a stool sample tested and it was positive for a 
bacterial infection which required Zythromax to treat. Just a suggestion.   

-I've had several composite fillings without problem.  I know that some of my 
allergies act like a gluten reaction, so maybe it is an allergy you were not 
aware that you had.

-I have a similar problem with dental work, but in my case even periodontal 
cleanings can make me bedridden. I have wondered whether "stirring up 
bacteria"  or "mercury issues" are the cause of grief & agony following dental 
work.  Hadn't even thought that it could be gluten.  -- For me, gluten could 
perhaps explain composite re/placement ... but I don't think it would be the 
cause of my misery following prophy procedures.  (My hygienist polish 
w/baking soda, sort of a mini sand-blaster device ...

-I am certainly not an expert in this subject but have known other people who 
had mercury containing fillings removed.You have gone to a specialist who 
should know the correct procedures and precautions, however I have heard 
that people often do react unfavorably to this procedure if any of the 
materials being removed are not evacuated correctly....dental dams, etc. are 
necessary.  

-Sure sounds as if bacteria are running wild in your body...the removal 
probably released all kinds of hidden toxins, ouch that's gotta feel like toxic!  
Hope the resin does no harm.  

-It seems to me that it is possible you picked up a bug at the dentist's. I was 
sick to my stomach for days till I found this remedy online - put 1 tablespoon  
turmeric (the spice) in 1 cup of warm water. Drinking thru a straw, drink as 
much of this as you can - just a half a cup can work. 

-I know we like to blame things on Celiac but it sounds like you just have a 
nasty GI bug which usually come on fast and furious.

-I guess the question is--if your dentist used the composite described in the 
patent, what thickening agents did he actually use in part 2? Reading the 
patent I see it says:

"...the water soluble thickening agent is an inorganic thickening agent or is 
selected from the group consisting of carboxymethyl cellulose calcium, 
carboxymethyl cellulose sodium, starch, starch sodium glycolate, starch 
sodium phosphate, methylcellulose, sodium polyacrylate, alginic acid, sodium 
alginate, alginic acid propylene glycol ester, casein, sodium casein, 
polyethylene glycol, ethylcellulose, hydroxyethylcellulose, gluten, locust bean 
gum, gelatin and mixtures thereof."

Which is to say, it may contain gluten, but most likely doesn't. Further, even if 
the thickening agent contained gluten, it should be completely bound within 
the composite, whose purpose is to not leach or decompose in your mouth. I'm 
going to run this one past one of my chemist friends to verify that thought, 
but reading the entire patent, it looks as if this is a compound that definitely 
should not be putting gluten into your system.

-You may want to call your dentist, get the name and manufacturer of the 
composite, the cement he used, and everything else used in preparing the 
tooth before putting it in. Then call the manufacturers and ask. 

-Yes, the dental product companies don't give out info.  I ran into this problem 
two years ago when I needed a crown replaced.  I finally changed my dentist -
found one who was willing to work with a sensitive celiac's needs.  They 
checked everything for me and I had no problems!  I am in the San Francisco 
Bay Area and would be happy to give out his contact info if you are local.

-Is it possible you could be reacting to the mercury that was removed; I've 
heard the fumes can be really toxic.  

-I'm sorry you have had such trouble with your dental issues. I have also. I 
didn't go to the dentist for 3 years due to gluten in products they used and 
now just have 3 teeth pulled and more fillings to be done. Trying to find the 
answers to all this also.

-Do you think the problem could be with the mercury removal?  I have heard 
that removing it releases it into the system.  Some doctors feel you get 
more mercury if you remove a filling than if you keep it.

-So sorry to hear about your troubles, but I have had many replacements over 
the past few yrs and not experienced any problems.  My dentist knows of my 
situation.

-Hmmm, this is tricky b/c you could also be reacting to getting the mercury 
out. Did your dentist create a dam to block the mercury vapors? Even the 
tiniest amount can be problematic.  My dentists use a 3M composite material 
and my son and I do well with that for fillings. They're closed today, but I can 
call Monday if you like and get the exact name of each item.

-I have wondered about this also.  My 8-year-old daughter started to show 
symptoms of Celiac Disease after her last dental (temporary) filling, and I was 
concerned about her filling as well.  It was extremely difficult to get any 
answers, and the dentist did not want to question the company which 
provided the materials....she advised that I could contact them, myself, if I 
wanted to.  I felt that was a sad situation, thinking a dentist would want to 
know whether or not the materials were gluten-free for other patients in the 
future.  Sad that she wouldn't take any responsibility or action. Have you 
contacted the American Dental Association?  I'm sorry I don't have the 
answers for you.  My daughter improved greatly before her filling was 
removed, so I'll never know if it was a contributing factor.   

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