CELIAC Archives

Celiac/Coeliac Wheat/Gluten-Free List

CELIAC@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
Christine Hanisco - Serendipity Gourmet Specialties <[log in to unmask]>
Reply To:
Date:
Tue, 16 Aug 2005 21:43:40 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (85 lines)
<<Disclaimer: Verify this information before applying it to your situation.>>

Continued from Summary 1...
Had (95%) my thyroid removed 32 years ago because it was out of whack -
Graves Disease. However, thanks to the ignorant doctors, I was never put on
supplement till I begged and begged and begged 2 years ago. I had seen that
my TSH was too high for years, but Drs didn't listen. I leveled out at 112
mcg. Then I was dx'd with CD 6 months ago and now that I am absorbing for
the first time in years, my TSH has dropped to 0.09. So, I am now on 100 mcg
and so far am about 0.6. I really feel that if I had been dx'd about 40
years ago, when I think I was first triggered, I probably would have never
developed the thyroid problems. Now, I just work on cleaning up the terrible
damage that has happed for all those years - severe erosive arthritis, major
osteoporosis, peripheral neuropathy, sjogren's syndrome, malabsorption
syndrome causing fingernails to disintegrate, etc. But I just take one day
at a time. So, yes, since you are absorbing more, and if you never had
anything removed, you might just not need supplement at all. I sure wish I
had known that way back when.  (Chris' comment: Wow! Before I started the GF
diet, I found out I had several antibody things happening including
Sjogren's. I also have fingernail problems that seem to be clearing up
suddenly. Interesting!) 
---
I will be very interested in the replies you receive to your post about
going gf possibly healing the thyroid. After two and a half years of being
gluten-free, I was able to reduce my dosage of Synthroid very slightly. I
have Hashimoto's Thyroiditis, which was diagnosed ten years before I went
gluten-free. I've never read that being gluten-free can heal the thyroid,
and in my case I think my thyroid is pretty much destroyed by scar tissue
from the autoimmune attack. But I'm with you in thinking that perhaps our
bodies are more able to use our medications effectively.
---
Hashi's can sometimes do this ... alternating between hyper and hypo.  It's
not the most common presentation, but also not rare.  Could also be the
hormones are having an impact.  If you feel hyper sometimes, talk w/your
endo -- perhaps you do need to cut back on your meds. It would be wonderful
if you were experiencing healing as a result of your GF diet ... who knows?
Maybe you are.
---
I was hyperthyroid 11 years ago.  I had radio-active iodine (RAI) to kill
off all or part of my thyroid.  I was on Sythroid and now am on Armour
thyroid.  I've been gluten-free for 17 months now, I have not seen my
thyroid levels change, but I'm due to be tested again.  Did you have RAI?
Or were you hyper and then went hypo on your own?  I know gluten-intolerance
is linked to thyroid disease. I also have osteopenia and I wonder if that
will improve or not on a gluten-free diet.  My TSH is around 0.2 and I worry
about bone loss due to being at hyper end of normal.  I've read the ideal
TSH is 1.0 (1-2).
 I'm worried about getting too much T3 to T4 on Armour, so I am considering
switching to Synthroid + Armour to get a more normal ratio of T3/T4.  
---
My TSH improved after going GF and soy free.  However, I still have some
sort of thyroid problem. I feel helped by taking the "thyroid tissue"
supplement from the health food store. My guess is that the thyroid healed -
but perhaps not completely...and his supplement helps fill in the gap...
---
I, too, have positive thyroid antibodies.  I was first diagnosed after the
birth of my second child...very hyperthyroid (TSH .01) at first, then very
hypothyroid (TSH 13).  The endo just wanted to wait and see how I regulated
myself.  He said my condition was postpartum thyroiditis.  It has fluctuated
since then for about 4 years.  About a year ago, a new endo tried me on
synthroid and levoxyl, (of which I didn't want to do) but my body didn't
tolerate it.  It made me feel very hyperthyroid.  I was just recently
diagnosed with celiac (May of this year) so have only been GF since then.
My TSH was 4.5 in March and I go this month to have it checked again.  We'll
see how the GF diet has affected it, if at all. Just a side note...the
presence of thyroid antibodies is apparently a diagnosis of Hashimoto's
Disease (another autoimmune condition), and is highly linked to celiac.
(I'm not an MD but got this info from everything I've researched.) I would
love to hear if you find that others had their thyroid issues helped or
resolved with a GF diet.  Please let me know. (Chris' note: Yes, I do in
fact have Hashimoto's.)
---
I had a similar experience before finally having my thyroid irradiated for
hyperthyroidism. I no longer have the paper but I believe it was published
in Southern Medical Journal in December 1998 - the title was something like
"Hypothyroid Graves Disease."  Several cases describing an unusual pattern
of swings from hyper to hypo were described. The Thyroid Solution by Ridha
Ahrem is very good for an overview of thyroid problems.  The intermeshing of
thyroid and celiac is confusing since thyroid supplements are absorbed at
the small intestine site which becomes inflamed with gluten ingestion.
Maybe your intestine has healed and you are absorbing your thyroid
supplement better?

*Please provide references to back up claims of a product being GF or not GF*

ATOM RSS1 RSS2