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Dear List,

A handful of replies to the original question about why people resist 
being tested for celiac came in after I posted the summary last week.

Responses from the last five writers echo what people have been saying:

The diet
idea of life-long changes is terrifying
Hard to believe wheat or gluten could be bad
Too many flaws in the testing
Denial and fear

Here are some specific cases I thought interesting:

1. One woman's teenagers, who were on gf diet as children, went into 
remission (n.b. Peter Green says celiac can "ebb and flow") at 
puberty and don't want to hear a word about mother's adult onset 
celiac. She speculates that they were more traumatized by having to 
follow the diet as young children than she thought.

2. A doctor told relatives who wanted to be tested that without 
symptoms, their insurance won't pay.

3. I have a friend who would rather suffer through her years of 
chronic fatigue, diarrhea, and many other issues rather than do this 
diet.  Her kids also have the same problems with chronic diarrhea. 
And none of them will listen to the argument about gluten sensitivity 
and how this could be an issue if the blood tests are negative.

4. Dtr-in-law, a nurse, who has had IBS for years. She has tried many 
kinds of diets, but will not try gluten-free diet. Kids have 
problems, too.

Thanks again, everyone.

best regards,
Mary B.
NYC
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