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I am astonished by the level of help I've received here. Thank-you so much
to everyone who replied.

My issue with no appetite has resolved itself, and so has the diahrea,
though I am still being woken early in the AM by the immediate need to go. I
used several meds for a couple of weeks, the most important is an
anti-depressent I am still taking, but the Nexium and Motilium seemed only
necessary until the anxiety over the situation was under control. I have
also been completely off the T3's for a week. I was taking ibuprofen instead
until my GI today said NO NO NO ibuprfen or aspirin products. I am going to
try without- one of my pain management strategies has been to join a gym
with my 13 y./o and to eat whole foods.

I don't know if this was the reason for the diahrea and loss of
appetite, because consitipation and increased appetite were always my
problem on glutin.. but it turns out I was still getting glutin for the
first 3 weeks, in seasoning salt. I've since gotten excruciatingly careful
and the diahrea has eased off to a couple of soft BM's a day. The main
symptom I've noticed that seems to come and go with minute amounts of glutin
is the peripheral neuropathy.

I am going to get some good probiotics and L-Glutamine as suggested by
several respondants, to build up my damaged gut. I am also going to get some
liquid iron supplements to help with absorption, fluradix was recommended.

As for glutin, I was not going to attempt to eat out (I can't imagine
someone in a restaurant without any knowledge about celiac being on the ball
enough to read the labels of the seasonings and flavourings put into the
food- since I effectively did the same thing to myself!) , until today, I'm
on the fence about doing a gluten challenge and a retest on the antibodies
(my first test was borderline, 20, 2 years ago).

I apologize for the delay in this summary/update but I thought it would
probably be best for the list if i saw the specialist first  (earlier
today).

It was a somewhat disturbing experience. The working diagnosis is to rule
out Crohn's disease, re-test for CD, and test for H-pylori. Along with the
reflux and epigastric pain, my small intestine is palpably inflamed. He
actually took my hand and pushed it down over this fat tube feeling thing.
the ironic thing is, my abdomen has stuck out further on the right side,
visibly, since the birth of my 4 y/o- I thought I just had poor muscle tone
from the pg. So it was disturbing to feel this inflamation, but at the same
time, it was good for someone to finally have some tangible proof that
something is indeed WRONG.

So I am scheduled for a small bowel follow through x-ray series, a
colonoscopy, re-testing for CD, and the breath test for H-pylori.

The thing I am torn about is re-introducing gluten for the challenge. I just
don't want too. I have had far too much improvement with my fibromyalgia
symptoms, and my bowel symptoms may have gotten worse at first but they are
definietly getting better GF, to think that I don't have CD. I literally
feel sick at the thought of doing it. I have been free of narcotics for the
first time in four years since going GF. I know that eating it again, even
just for a week, will mean the kind of pain I won't want to live with, which
will mean turning to the codeine relief again. And then I'll have to wean
down again.. and on it goes..

I welcome any and all opinions about whether I should do the challenge or
not. I've been GF to the best of my ability since the beginning of March.

Thank-you to all.

Darcie
36, borderline blood titres 2 years ago, fibromyalgia, IBS symptioms, GF 6
weeks and vastly improving

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