<<Disclaimer: Verify this information before applying it to your situation.>>
I had 23 responses.. the majority of you said throw my ex out of the house
(smile)... believe me, I wish it was that easy.
1 sent my letter to Dr. Fine. He has written me but has not replied to my
letter back to him.
1 said to cook with sorghum flour,
5 said that she does have to be eatting gluton for the tests to come out
accurate, but she does not have to eat alot of it.. just enough that she
consumes some each day.. so she decides when she is willing to be in pain and
then picks out something that she is missing eating and eats it... 1 thing
per day to keep it in her system.
2 said the tests are not foolproof and 20-50% return with false negatives.
This person said the stool test is probley th emost trustworthy if she is
eating gluten.
1 said that the test was a good one.. and the malabsorption test tells isf
she is getting proper nourishment from her diet or not.
Was given the following website with an indepth explanation of the tests
and the following list of reliable labs (thank you so much!!)
http://www.enabling.org/ia/celiac/diag-tst.html#US RELIABLE LABS FOR
EVALUATING TESTS FOR CELIAC
1) IMMCO Diagnostics, 963 Kenmore Avenue, Buffalo, NY 14223
716-876-5672, 1-800-537-TEST (8378), [log in to unmask]
2) Immunopathology Laboratory, Dept. of Pathology, 5233 RCP,
University of Iowa Hospitals and Clinics, 200 Hawkins Drive,
Iowa City, IA 52242, phone (319/356-2688/8470)
3) U. of Maryland at Baltimore (Baltimore, MD) 1-410-706-1997:
Pediatric Gastroenterology & Nutrition Laboratory,
UMAB/Bressler Research Building, Room 10-047, 655 West
Baltimore Street, Baltimore, MD, 21201, Attention:
Karoly Horvath, MD, or Athba Hammed, Research Assistance.
Phone (410) 706-1997 or Fax (410) 328-1072. Baltimore is where
the 3-year blood study is being done for celiac disease and
their first degree relatives. Dr. Fasano and Dr. Horvath are
very involved with celiac research there.
4) Specialty Laboratories, 2211 Michigan Avenue, Santa Monica,
CA 90404, phone (800) 421-7110, HTTP://WWW.SPECIALTYLABS.COM
5) Mayo clinic has only recently admitted that any normal foods
you eat can make you sick, but since making that step they have
become very expert at celiac: Joe Murry has a book on celiac
and is perhaps the best known authority on the disease. Mayo
Clinic: Dr. Joe Murray now works there.
http://www.mayohealth.org/mayo/common/htm/index.htm
6) Prometheus, Inc. 5739 Pacific Center Boulevard - San Diego,
California 92121, Tel: (619) 824-0895 / Toll Free (888) 423-5227 / Fax:
(619) 824-0896:
Was given the following lists of some foods that are good
Glutino:
Corn Fiber Bread (like a whole wheat taste and feel)
Poppy Seed Bagels
Carrot Cake (So creamy)
Brownies (satisfying and sweet)
Veggie Pizzas
Glutafin (This is one of the lines we bring in from Europe)
Custard Cream Cookies (Vanilla Cream, Kids Love!)
Bourbon Cookies (Chocolate Cream)
Dr Schar (Another European line)
Pizzirilli Crackers
Pepitas Chocolate Chip Cookies
Pastas (A huge line made with Corn and Rice)
Bi Aglut (Europe too... )
Crackers (like Ritz, kids love!)
Pasta (A huge line made with Rice, Corn and Potatoes)
and the website http://www.glutino.com/
for good products
Thanks so much everyone!!
alana
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