<<Disclaimer: Verify this information before applying it to your situation.>>
My question was: "Have other Celiacs experienced the development of
additional food intolerances (not allergies) such as dairy and soy and if so, is
there some kind of test for it other than just elimination of the
potential source?" I received 43 responses (some very similar) so I will try to
summarize below. I must admit many had more questions than answers but here
goes:
1. "I believe I was told that once the intestines healed, you can become
intolerant to other allergens. I have resorted to eliminating a lot of
sweets from my diet which helps."
2. "I believe the best way to detect new intolerances is through a food
diary."
3. Four people mentioned the possibility of Esosinophilic
Gastrointestional Disease and said that a GI doc. should be able to help determine if this
is the case. One person included the following web site for more
information on this condition: _http://www.apfed.org/_ (http://www.apfed.org/) and
click on about EGID.
4. "I think that it's not uncommon to find additional food intolerances
or allergies, considering that the whole system is hypersensitive in a
Celiac. Have you read Karina's Kitchen online? Her experience is similar to
yours, in that she has discovered many foods that she used to consume and no
longer can. I recommend you check out her site as a source of information,
links, and support."
5. Another person suggested keeping a food diary and said that "the GI
doc. will not be able to do anything for you."
6. "There is some type of food allergy panel that is performed on common
food allergens via a blood test."
7. "Unfortunately many of my club members have multiple allergen
reactions. Intolerances by definition are difficult to test; the immune system
does not produce IgE. It quite often takes much longer for complaints to come
on, thereby masking the possible link between the offensive substance and
the complaints themselves. A useful test is the IgG(4) antibody test.
Here the presence of IgG(4) antibodies is determined. The reliability of this
test varies between 80 and 90%."
8. "I think it's because we increase the amount of less common foods we
consume when we eliminate gluten. Foods that hadn't caused a problem when
consumed in comparatively small doses cause problems when consumed in higher
amounts on a daily basis." (This makes sense to me.)
9. "My husband has gotten the most help from a Homeopathic Doctor who had
mouth swabs and blood tests done for him. Also, the blood for the food
sensitivity test was analyzed by ALCAT Worldwide, Cell Science Systems, Ltd,
852 South Military Trail, Deerfield Beach, FL 33442, USA. 1-800-US ALCAT
(872-5228) or http://_www.ALCAT_ (http://www.ALCAT) .com "
10. "I would surmise that many food intolerance problems are becoming so
much more common because our food is so processed and has so many
ingredients. Also, I think gut flora has something to do with food intolerances."
11. "I have eliminated all sugars except honey from my diet and the rash
and cramps are gone."
12. "You usually can tell if you react to a food as an allergy because
you will have immediate reaction, but if it is gluten induced, it takes at
least four hours to react."
13. "A Naturopathic Doctor visited our celiac group and spoke about a
blood test that she learned how to perform in the US that could identify other
food intolerances. It's called The Carroll Food Intolerance Analysis.
You can read about it on various sites on the Internet to get the background
of this test. It's a finger prick blood test."
14. "I manage my own diet. My GI doc. who has since moved out of the
area tested me for a small intestinal bacterial overgrowth (SIBO). I took 3
courses of antibiotics and then megadoses of probiotics for months. After
that I was able to eat more foods than I had before."
15. "My whole family had a similar experience which turned out to be due
to an enzyme imbalance. The underlying condition is from bacterial
overgrowth in the small intestine. I eventually had an endoscopy to diagnose it
and had to take antibiotics to get rid of the infection in its acute phase."
(This person recommends the book "The Specific Carbohydrate Diet" and
this person takes Enzymes (Pancreatin - OTC) from the Vitamin Shoppe with
every meal.)
16. "Do you take L-Glutamine to help heal your gut? How about digestive
enzymes? A lot of people find benefit from probiotics." (I will look into
L-Glutamine)
17. "A lot of food sensitivities stem from low adrenal function, which
most likely is at the root of my problems, intertwined with the gluten
problem. Low cortisol causes a lot of allergies or sensitivities, including to
food. The allergist was no help to me, but with my DH so went to see an
antiaging naturopathic doctor and he ran a food allergy ELISA Test on first
visit."
18. "I rarely eat the alternative flours anymore and certainly not two days
in a row. I try to vary my food...eat mainly vegetables, fruits, chicken,
etc. similar to a "rotation" diet and feel this helps to prevent
additional intolerances to any one food." (Rotation of food makes sense to me.)
19. "Maybe the allergist can't help you because you are dealing with
intolerances rather than allergies. These are tough to discern, and I
certainly have them, along with Celiac Disease. I live in Canada and there is a
test (expensive) for intolerances at this link:
http://www.food-intolerance.ca/get-tested/en/."
20. "I am not formally diagnosed as you are. I went to a nutritionist
who ordered tests from: _http://www.enterolab.com/_
(http://www.enterolab.com/) . I had the best value testing done is a genetic testing for celiac
plus gluten and casein intolerance. I knew I had a dairy reaction even
before testing."
21. "Hope this helps.....gluten, casein, soy, corn, eggs, peanuts
(legumes - some beans have the same casein as milk) and sometimes fish. These are
the most common foods people are intolerant to....all high protein."
(Suggested keeping a food log)
22. "I was wheat light for 15 years and now GF for 5 years. i thought I
had a wheat allergy for 15 years. I am 62 and in amazing health and on no
medications. You can check out this site for good advice on vitamins, etc.
_http://glutenfreeandbeyond.org/forum/index.php_
(http://glutenfreeandbeyond.org/forum/index.php) ."
23. "We had similar experiences and have found that ELISA Testing helped
a great deal in identifying the other food antigens. You can order the
test through Vitamin Research Products on line:
_http://www.vrp.com/ProductPage.aspx?ProdID=9840_ (http://www.vrp.com/ProductPage.aspx?ProdID=9840) ."
24. "If you can find a good chiropractor or other holistic physician who
uses Applied Kinesiology - it saved me a lot of pain and suffering and got
me off anti-inflammatory meds. If I had just tried eliminating foods by
trial and error, I don't know if I would have ever identified corn and it's as
hard to avoid as gluten and soy."
25. "Since getting a tetanus?diphtheria shot a decade ago and having a
reaction to it, I have been having problems with increasing food
intolerances. I call it allergies but most of my problems are IgA and G problems.
Since I was having to eliminate so many foods from my diet, I had to search
out remedies, not avoidance. (some remedies suggested are: HCI anddigestive
enzymes, Dr. Hulda Clark's zapper, Dr. Hulda Clark's liver flush protocol,
deep abdominal breathing, B-12/folic acid weekly shots, and limited
Magnesium shots)
Many thanks to all of the people who responded to my complicated question.
I hope this summary will help out. I, myself, will try the "rotation
diet" first along with L-Glutamine. Jane in MD
**************An Excellent Credit Score is 750. See Yours in Just 2 Easy
Steps!
(http://pr.atwola.com/promoclk/100126575x1221823265x1201398681/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072&hmpgID=62&bcd=Jun
eExcfooterNO62)
Visit the Celiac Web Page at Http://www.enabling.org/ia/celiac/index.html
Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC
|
