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I am the parent of two children (4&8)  diagnosed with CD.  I have finally
begun to be tested myself, as I believe it came from me.  I have had the
bloodwork done and sent to Prometheus.  It was negative.  I have yet to
undergo stool tests and endoscopy, yet my GI wants to prescribe Creon for
what he believes to be pancreatic insufficiency.  I find this curious since
all of my bloodwork was reportedly negative.  I have not seen the GI again
yet.  My opinion is that I will not take anything until the full battery of
tests are complete.  I know negative bloodwork really means nothing, since
negatives are common in folks who have the disease.

When I saw this GI back in November he seemed fairly knowledgeable about CD
and willing to refer out to Peter Greeen (I live in NJ) if I chose that.  He
also acknowledged that negative tests do not mean I don't have CD.  I can't
understand where this leap to pancreatic insufficiency came from if all of
my bloodwork was normal.

Everything I read about Creon indicates it aids in digestion by moving
things through your system.  I do not need any help with that - that's part
of the problem.  Before I take any drugs, I plan to go GF.  I would have
already done that if I still didn't need to do other tests.

Has anyone had this or similar experience?  Any advice?

Thanks in advance.

Roni Lamb in NJ/USA
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