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Donna Hudson <[log in to unmask]>
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Fri, 7 Jun 2002 21:39:12 -0500
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<<Disclaimer: Verify this information before applying it to your situation.>>

 In my alter ego, I hang out on a support group for iron overload, aka hemochromatosis.  I was really using you guys for a control group to test out my theory that iron fortified formula causes projectile vomiting in infants that are prone to iron loading.  I knew a woman whose infant daughter had projectile vomiting and the pediatrician told her to switch to a non-iron fortified formula.  The vomiting stopped, and the doctor said some kids just couldn't take the iron.  On the hemochromatosis group, some people have said that iron in supplements made them sick.  
    Naturally, I considered that celiac could cause the problem, especially since one of the men I had met who'd had the surgery is very small. But I did not expect to get as many responses as I did.  I wish I knew how many people are on this group so I could do a little math to compare the two groups.  I may find that in this as in so many other things, celiac and hemochromatosis create the same problems via vastly different mechanisms.  Both cause: Chronic fatigue, fibromyalgia, Arthritis, Thyroid trouble, Heart disease, cancer, infertility, early menopause, Digestive trouble, Anemia, brown marks on face, depression, Gas and indigestion, abdominal pain, diarrhea. ( I have more info on this if anyone is interested.  Comparing CD and HH is a pet project of mine, since I have one and my husband has the other.)  Note that respondent #17 said that her brother tested negative for celiac, but has "liver disease".  Sounds like hemochromatosis may be the problem.  The folks on the hemochromatosis group have some celiacs in their families, and I'm sure the reverse is true.  
    The official info on pyloric stenosis says that these children are born with a tight pyloris, and then over the first few months the muscle controlling the valve gets tighter and tighter.  This sounds like a likely scenerio for hemochromatosis, in which I think tight muscles are the norm from early in life.  I suppose a constantly irritated pyloric valve (from gluten and casein) could also tighten up.  Note, that very few of the cases here required surgery, none in the much smaller hemochromatosis group.  If surgery was not required, did these babies actually have pyloric stenosis?  Perhaps they had something that resembled it, like reactions to diet.  Or perhaps in families that inherit some kind of "pyloric stenosis gene", it is only those infants who also inherited CD or HH genes that show symptoms.  Or is projectile vomiting not pyloric stenosis unless suregery is required?    

Now for why I wanted to find out which families are prone to this problem and what might be done avoid surgery:  I have now had 3 massage clients over my 12 year career, all men, who have chronic and plainly abnormal tension in the muscles on the inside of their thighs (the adductors).  What they have in common is major abdominal surgery, two as infants for pyloric stenosis.  The third had surgery as an adult, within a year the adductor tension had become chronic, and he was so bad as to make the other two look normal.  Some mornings he could hardly get his legs apart enough to walk.  He'd had a burst appendix, spent 2 months in the hospital with a drain tube, so I think that he may have a lot of adhesions from the infection.  Since there is no "Chronic symptoms 35 years after surgery support group" (let me know if there's anything like that) I am also fishing to find out if anyone else has the same side effects. 
      The theory here is that adhesions within the abdominal cavity are creating tension on the inner fascia of the abdomen, translating down the fascia of the inner legs.  I've also worked on two older people, and man and a woman, with chronic back pain that did not respond to chiropractic tx.  Both of them had had part of their colon removed, so I checked and found the abdominal muscles full of trigger points.  Working these trigger points reduced their back pain considerably.  The theory behind "visceral manipulation" is that if the viscera are unable to slide freely, due to adhesions or prolapse or malpositioning or imbalanced forces, flexibility is reduced, and distand pain and restrictions may appear.  
    Any other comments or ideas are certainly welcome.  Thanks to all who contributed.  Donna H
    

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