<<Disclaimer: Verify this information before applying it to your situation.>>
Received some helpful information which is set forth below. A number of
emailers were very interested and asked for whatever information I
obtained. The website cited further down is a goldmine of information:
=================
Wow! Leif, where did you get figures like that? My understanding from
what I've read is that intestinal lymphoma is very rare in the general
population, but that *untreated celiacs, who don't do the diet are 17
percent more likely to get it than the Gen Pop is. Still that's fairly
uncommon, in my understanding. If you have an authoritative source that
says different I'd be interested in reading it. I love to be wrong. It
keeps me young :) If it is more common I guess I should know about it.
In addition, my readings tell me that once on the diet, celiacs have
about the same incidence that the Gen Pop does.
[I am embarrassed! I cannot find the source of those figures. I was
doing a lot of surfing and neglected to copy the source down. The
figures stuck in my head though, and that is what I put in my original
question to the group! If anyone else has seen those figures, please let
me know!]
=================
Hi, Regarding lymphoma (the "L" word), I try not to think about it and
just stay as gluten-free as humanly possible for me, anyway.
25 years ago, my father had cancer in the jejunum (part of small
intestine). As far as symptoms, my parents were not that forthcoming
except that I know he was in and out of the hospital over a period of
six months before they finally did exploratory surgery and found the
tumor. He was having tests over that time for blood in his stool and
the test results would vary, be inconsistent from one time to the next.
They thought it was a bleeding ulcer for quite some time but I guess it
didn't respond to typical treatment for that then. He was also loosing
weight. My niece the nurse said that back then (and perhaps even now)
they were going in there, looking, saw cancer, removed it, and didn't
biopsy for anything else like damaged villi, etc.
That's about all I have, but the good news is his cancer never came
back! I am certain in my mind that he was an undiagnosed
celiac. Convincing my family? That's another story ...
=======================
The signs of lymphomas include weight loss, low-grade fever, an
increased ESR, enlarged lymph nodes, and a widened mediastinum seen on
the chest radiograph. The latter stages feature liver and spleen involvement.
=======================
The text books say that when you feel the symptoms it is too late.
Severe/ sudden weight loss and weakness are primary
I have Lymphoma and the first symptoms were Celiac type of
symptoms--digestion and tired problems
Lymphoma is a disease of the immune system and when one has Lymphoma,
any other problems that exist in the body seem to flare up until the
Lymphoma is under control--which, now days, it can get under control.
Lots of information here:
http://www.datafork.com/lymphoma.htm
====================
I had this about 16 years ago which was when it was a malignant tumor in
the small intestine.
It took a long time of upper GI tests etc. among others to get to the
point where a growth was showing up in the contrasted xrays type of
thing.
An Endoscope was put down my throat via a thin cable with a light and
snippers on the end of it for to bring a sample biopsey for them to do
pathology on. As a rule this is done when you are awake or mildly
sedated.
The tumor is very rare,one in a thousand at that time. Which is why a
lot of mis-diagnosis is reported.
Endoscopy is the only true way of diagnosis for CD as yet.
Before you get this far you may lose lots of weight,vomit a lot,at least
more than the normal from any other ailments. Experience dizziness,some
digestive type cramping pain. Severe or otherwise.
I vomited bucket fulls to be honest with you as the growth blocked
normal evacuation procedure.
If there is a growth it will eventually shut your system down if not
caught in time. But you should get lots of indicators that something is
not right and hope the Doctors are up to date.
A lot of Doctors are not trained for CD associated symtoms and you may
get lots of useless tests done or told it is all in your head. However,
today I think more is known now than 16 years ago so you may have better
results.
Hope this is of some interest,
|
