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03/15/06

Hello Everyone,

First, thank-you to all that responded and the wishes for better health.
Just to clarify, my sister's pregnancy was 7 yrs ago. Twin boys, both doing
well. Through your responses and reading the book "Celiac Disease, A Hidden
Epidemic" by Peter Green, she is taking the GF diet more seriously. Below is
summary of responses:

 

SUPPORT GROUPS:  Memphis Celiacs (unit of CSA), Lisa Trenthem 901 276 7751
[log in to unmask] (www.csaceliacs.org <http://www.csaceliacs.org/> )

 

TESTING:

Enterolabs (alternative to blood tests and biopsy)  www.enterolab.com

Biopsy of small intestine still gold standard of diagnosis. Blood tests
useful as screening tools. Blood test 15-20% false negatives even in
patients with villous atrophy. (numerous references cited). I'll be happy to
pass them on if you send me a request.

Blood test - which blood test? If IGA deficient, then IGA test would be
negative as there is no IGA to respond to the antigen.

 

DOCTORS

No recommendations for doctors in Memphis. Nearby doctors

Little Rock, AR  Dr. David Nelsen, family physician with CD Univ. of
Arkansas for Medical Sciences See article at weblink 

http://www.aafp.org/afp/20021215/2259.html

Nashville, TN  Dr. Craig Weirum, endocrinologist, medical advisor to
Nashville CSA Support Group, 615-324-1204

 

Regards,

Darlene


*Please provide references to back up claims of a product being GF or not GF*
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