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I got the results of my bone density check today and it was dismal, this was 
my 4th scan in the last 8 years and each one worse then the last. There was 
significant loss the past 2 years and there now recommending I have yearly 
scans until my bone loss is stabilized. I've been feeling really run down 
for months now as well. My GI does not want to do another scope as I become 
violent under couscous sedation (I don't remember a thing but they said I 
became "extremely combative" and had to end the procedure early) and they 
didn't get a chance to biopsy the intestines, just got a quick look and said 
it looked fine (yes I know..) I've been GF for 7 years and I'm positive 
there is no gluten in my diet although I'm going to get labs done since I 
haven't in a couple of years and see if they come up positive. Who do I need 
to see about refractory sprue? I was symptomatic for 24 years before finding 
out I had celiac (I'm 31 now and showed symptoms from infancy which is 
common in my family for some reason (multiple members with celiac)) that's 
the only thing I can think of for continued malaborption. I'm already on 
pancrease digestive enzymes and have been for over a year for pancreatic 
insufficiency and there working well based on labs (kept having dangerously 
low mag/potassium/serum calcium levels which resolved when I started the 
enzymes). Any thoughts about who to see or what's going on with me? I see my 
primary Dr Friday and would like to have some questions ready.

Thanks!

Heather 

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