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From:
Christine Hanisco - Serendipity Gourmet Specialties <[log in to unmask]>
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Date:
Tue, 16 Aug 2005 21:43:35 -0400
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<<Disclaimer: Verify this information before applying it to your situation.>>

I want to thank you all for your responses! It seems that some have seen a
positive difference in their thyroid levels and some have not. It seems like
it depends on how long you have been celiac or had thyroid problems. Since I
only had abnormal TSH levels for 1 1/2 years before going GF, perhaps I
saved myself in time. Or perhaps my body is absorbing my meds better due to
a healed intestine. I guess time will tell, because I just had a baby 3
months ago and my body is whacked out right now. I think I'm going to
contact my endo and see what he thinks. Since I'm feeling a bit on the hyper
side, perhaps I need some extra testing and medication adjustment during the
postpartum period. It's so hard to tell with Hashimoto's because (from my
understanding) when the antibodies are attacking, it can cause thyroid
irritation and the thyroid can output too much hormone, but then after the
attack is done, the thyroid scars up and loses it's ability to produce and
you become hypothyroid. It can swing back and forth. So what I need to
figure out is - am I feeling hyperthyroid because I'm healing? Or am I
feeling hyperthyroid because it's under attack? I guess time will tell.
Thanks again everyone! I am truly sorry that so many of you have had thyroid
involvement among other things. It makes me feel bad that so many people are
slipping through the cracks getting so sick and even dying from ailments
that could possibly be avoided by something as simple as a dietary change.
(Not that being GF is simple, but you know what I mean.)

Christine in NH (the DippyChick)

Here are the responses. I'm putting some of my own comments in parenthesis.
---
Nope - been g/f for 3 yrs now and was diagnosed as a hypo about a year ago. 
The Endo. can't get my body adjusted right.  Been on 88 mcg now and the
goiter seems the same.  Getting blood test this week.  Hopefully, the
results are better.  Consider yourself lucky.
---
My experience is that I started absorbing much more of my thyroid
medication.  It seems that I had been absorbing only about 50%.  I know this
for sure as I had my thyroid irradiated so I no longer have my thyroid.
Since you do, it is possible that there may be 2 effects going on.
Good luck.  I know it is frustrating sorting out what symptoms are caused by
what and trying to adjust several things at once.
---
Actually, your experience isn't unusual. We discussed that at some length in
_Dangerous Grains_ . If you can get it at your local library, you might look
up the section on molecular mimicry and the one on autoimmunity. Also, are
you getting enough magnesium?  (My answer: Yes, at least I think so. I take
a pretty good powdered multi-vitamin plu a mineral supplement to help my
anemia. I think it has magnesium but I'll double check.)
---
Absolutely!  If CD is "caught" early enough, I believe an ailing thyroid can
recover.  Gluten consumption for gluten sensitive individuals can trigger
your body to produce auto antibodies to many different tissues & organs, the
thyroid gland being a very common target. I have personal experience with
this phenenomenon.  For years before I got diagnosed with CD, I always had a
TSH that was on the high side of "normal."
  (High TSH means poor thyroid function.)  I suffered with all the symptoms
of hypothyroidism, but no one would treat me for hypothyroidism because I
was still considered "normal."  (WHATEVER THAT MEANS!) After I went GF and
began to feel like a normal person for the first time in years, my TSH began
to decrease showing that my thryoid function was improving.  After nearly a
year on the GF diet, I started feeling terrible again with all the old
symptoms of fatigue, depression, muscle pain, etc.  I went from doctor to
doctor trying to figure out what was wrong with me.  To make a long story
short, I finally figured out that I had been ingesting minute amounts of
hidden gluten several times a week for the past 5 months (in Lawry's
Seasoned Salt).  I removed the source & voila!  I began to feel normal
again.  After this experience I compared my thyroid function tests from
before & during this bout of gluten exposure.  During the time I was being
"glutenated" my TSH kept getting higher & higher showing worse & worse
thyroid function.  Soon after I removed the hidden source of gluten, my TSH
began dropping back to more optimal levels.  (Lower TSH means more thyroid
on board.) I later noticed two large palpable nodules on my thyroid that
were suspicious for cancer.  The doctors decided to remove them to see what
they were.  They weren't cancerous, but 75% of my thyroid gland was non
functioning, hardened white scar tissue.  Only a tiny bit was even
functioning.  I ended up losing the whole gland.  I believe years of gluten
consumption had triggered my body to attack my thyroid gland.  In other
words, gluten FRIED my thyroid gland!  I believe I could have saved my
thyroid if I had been diagnosed with CD decades earlier. 
---
I don't know about thyroid, but I had a dramatic and unexpected drop in my
cholesterol, about 40 points in my total cholesterol and nearly all of it in
the bad fraction of cholesterol.
I asked the cardiologist, and he said he was not surprised, that they know
heart disease has a substantial segment that is autoimmune.
Come to think of it, I used to be cold and now I am warm all the time.  My
T3 and T4 were always low normal and my TSH ok so I would not have much to
compare in my labwork.  I had all the Thyroid stuff tested 5 to 10 yrs ago
when I was going thru infertility treatment.  (Chris' response: I also
suffered from infertility - for 6 years!)
---
Continued in Summary 2

*Please provide references to back up claims of a product being GF or not GF*

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