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Subject:
From:
Eleanor P Wallace <[log in to unmask]>
Date:
Tue, 17 Aug 1999 16:50:39 -0400
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<<Disclaimer: Verify this information before applying it to your situation.>>

Has there been any encouragement/effort re: getting one or more of our
knowledgable MDs on a program such as "Today", "Kathy & Regis Live",
Oprah, etc.????  (I'm thinking Dr. Green, Dr. Worman, etc.)...

It would seem to me (having "devoured" recent posts to the
LISTSERV@MAELSTROM that there is much truth in the statements that Celiac
Disease (and associated conditions) are NOT "aired" because:

   1. There is no pill to be given - hence pharmaceutical companies are not
interested in "informing" MDs (and drug reps are always in MDs'
offices, as we know, "pushing" their wares);

   2. Many MDs are too busy to read much in their professional journals;

   3. Our best advocates for advances in the study/statistics on CD are
those of us who have CD - and our families/friends/supporters;

   4. The greatest need (for the best affect) would be to "get the word out
there" that we exist.....

What's your "take" on this??

Tho't about sending this to CDF -- do they have the "clout" that is
necessary to have it happen???

   Eleanor Wallace                 (Celiac Support Group of the Mohawk Valley)

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