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Subject:
From:
"Michael W. Jones" <[log in to unmask]>
Date:
Wed, 31 Jul 1996 23:50:03 -0500
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<<Disclaimer:  Verify this information before applying it to your situation.>>
 
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Internet~Internet~Internet~Internet~Internet~Internet~Internet~Internet~
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
 
1.  Internet Access:  If you have a computer and a modem, the only other
requirement for obtaining access to celiac information on the Internet is to
obtain service through an Internet Service Provider.  There are many choices
available.  The cost starts at a few dollar a month, with an average of
around $20.00.  Some services charge by the minute, so those costs can
increase, but there are ways to control these costs.
 
Recently, two providers started offering free e-mail.  The only restrictions
are that it is limited to email and that advertisements are included with
your messages.  In discussions with some of the current users, it appears
that these are reasonable services with a wide variety of local and 800
number phone service.  There is no cost associated with joining and if you
are not happy, just cancel all of your subscriptions to Internet Lists and
not use the service in the future.  Software is only available for the PC,
at this time.  Future editions will include the MAC.  Here is the
information for obtaining the software:
 
JUNO: You can get more information at http://www.juno.com.  To receive their
software, email your name and address to [log in to unmask]  You can even call
them at 1-800-654-JUNO.
 
FREEMARK:  You can get more information at http://www.freemark.com. To
receive their software email your name and address to [log in to unmask]
You also can call them at 617-492-6600.
 
2.  Celiac on the Internet Update:  The CELIAC e-mail discussion group now
has almost 1,500 members from  over 25 nations.    There is no cost to join
the discussion group, as the computer resources that support it are donated
by St. John's University as part of their medical outreach.  All you need is
e-mail access to the Internet.  To join, send an e-mail message to
[log in to unmask] containing this line:
 
        SUBSCRIBE CELIAC YourFirstName YourLastName
 
You can also read the discussions through Usenet: bit.listserv.celiac.
 
There is a separate e-mail discussion group for celiac children and their
parents called CEL-KIDS.  It is also free of charge, thanks to the
generosity of St. John's University.  It currently has nearly 200 members.
To join, send an e-mail message to the address listed above containing this
line:
 
   SUBSCRIBE CEL-KIDS YourFirstName YourLastName
 
If you have any problems starting your subscriptions, send an e-mail message
to Jim Lyles at [log in to unmask] or Mike Jones at [log in to unmask]
 
If you have access to the World Wide Web, nearly 100 specialized reference
files about CD are available from the CELIAC e-mail discussion group.  These
files can be found at:
 
   http://www.fastlane.net/homepages/thodge/archive.htm
 
Some very interesting reference files are available from the Listserve or the
WWW site.  A few of the highlights are:
 
        DIAG-TEST       This is a discussion of the celiac diagnostic process
                        and includes details on the blood tests and several
                        questions and answers about the process.
 
        CEL-HLA         Questions and answers on HLA typing and Celiac
 
        MXGLUTEN        Background on the maximum allowable gluten.  There is
                        no exact answer, but this discussion will give
                        everyone a better understanding.
 
        CUL-WHT         A thought provoking discussion of the history of wheat.
 
        FILEDESC        This is a descriptive listing of all of the files that
                        are available.  These include: initial diet
                        description sheets, company’s addresses, support
                        groups, calendar of national meetings, etc.
 
Recipes as submitted by the subscribers are available in quarterly referenced
files.
 
There are two other celiac e-mail discussion groups.  One is restricted to
medical and dietitian professionals with a clinical or research interest in
CD; the other is for celiac support group leaders.  Both e-mail groups are
provided by Princeton University, and are free of charge.  To join the
medical discussion group, send an e-mail message to Mike Jones at
[log in to unmask] with a brief summary of your professional interest in CD
and your university/medical affiliations.  For more information on the
leader's group, send an e-mail message to Mike Jones.
 
3.  The New England Journal of Medicine has joined many other publications
on the Internet. It can be reached at http://www.nejm.org.  The electronic
version contains abstracts of Original Articles and Special Articles and
provides the full text of the Case Records of the Massachusetts General
Hospital, Clinical Problem-Solving articles, Images in Clinical Medicine,
Molecular Medicine articles, editorials, Sounding Board articles, letters
to the editor, and book reviews. Every issue published in 1996 is
accessible.
 
4.  Wendy’s appears to be the first fast food company with a WEB site that
lists GF products.  As with any list, there is the potential for errors and
it does not account for local variation.  The address is:
http://www.wendys.com/gluten.htm

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