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Good luck Sandy with Jay's new pump!
My daughter Rachel started on pump month ago.  Doing better now.
(She was in hospital with DKA 6 days after we started.)  Now we know
if we get a reading over 250 twice in a row - we do an insulin injection
THEN check what else could be wrong.  Their bodies need insulin and
since they don't have any long lasting insulin anymore (Lantus or NPH),
it is very important to not let high readings go.  Be prepared for some
midnight and 3 am (or more) setting alarm clocks to get up and test.
That's really the only way you can fine tune the amount of basal insulin
they get.  Been a month - and we're finding that .6 is a good basal
for RAchel from about 10 pm to 3 am - but then she goes down - so
we need to lower hers - sometimes - but unfortunately every day is
a little different with activity level and carbs consumed.  The gluten
free pastas generally require us to divide our carbs by 15 instead of 20
so we're not night 2 hours later.  Did an A1C yesterday - know that
only 1 month is with pump - but looking forward to seeing if it is down
from 8.4 two months ago.  This is really better on their bodies in the long
run, but still hoping for a "pill for celiac" and even a patch for
diabetes -
Someday!  Good luck and keep in touch.!
Cathy, in Kansas, Mom to Rachel 10, dx diabetes 9/93, celiac 1/02

Sandy Frandano wrote:

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>Sender:       Celiac-Diabetes Support List
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>Poster:       Sandy Frandano <[log in to unmask]>
>Subject:      Pump
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><<Disclaimer: Verify this information before applying it to your situation.>>
>
>Hi all of you who responded to my plea a few weeks ago I just want to let you know Jay started the pump this weeK !!! Thank you everyone who gave him the support he needed. We just started on insuklin Tuesday so we definitlly need to fine tune (yesterday he could not get below 200-uuggghh) but the nurse educator said thats to be expected any helpful hints? Also my mother made Jay the BEST gluten free bread last week (lots of trial and error) Once she gives me the recipe I'll forward to you all it is an oven baked bread not machine. Thanks again to all and I'll keep in touch with our progress
>Sandy Frandano, NJ
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