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Hi Christine,
Please don't despair. It took 1 year for the diet to really take effect in my son.  He only started to gain weight at his 1.5 year appt. after the diagnosis.  There are days when he eats a ton and days he eats hardly anything.  Recently my son shot up in height by about 3 inches, so he still looks super skinny, but he's gaining.  It also takes at least a year for the celiac markers to go down. (from our exp)

My son was also diagnosed a few months after he turned 6... let me know if I can be of further help.

Lisa

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-----Original Message-----
From: Celiac/Coeliac Wheat/Gluten-Free Children List [mailto:[log in to unmask]] On Behalf Of Christine Fischer
Sent: January 30, 2009 1:20 AM
To: [log in to unmask]
Subject: [CEL-KIDS] How long did it take until the gluten free diet kicked in?

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Dear fellow parents,
My 6 year old son was diagnosed last August with celiac disease, and since the start of September we are on a strict gluten free diet. Somehow he did not react to it as fast/as much than I hoped. He still is not growing much, gained hardly any weight, and in the middle of december got a rash which looked like dermatitis herpetiformis. Since three weeks I changed the diet again to exclude all grains and starches (Specific carbohydrate diet), and his stool now at least looks very normally formed, he eats quite well, skin symptoms almost disappeared, but still is not gaining weight. We will have a blood check the beginning of March, I hope that at least his celiac markers have gone down. But I am worried that it takes so long for the diet to take hold.
I would be very appreciative if you could share your experience with me.
Thanks so much, Christine



* Cel-Kids Web Page:  http://www.enabling.org/ia/cel-kids *

* Cel-Kids Web Page:  http://www.enabling.org/ia/cel-kids *