<<Disclaimer: Verify this information before applying it to your situation.>>
Dear Cassandra:
Visit: http://www.csaceliacs.org/CelKidsSchool.php
The Celiac Spruce website actually has letters you can print out and give to the teacher, principal, lunchroom staff, nurse, art teacher etc. It even has a letter you can give to the school for when there is a substitute. My daughter in addition to Celiac disease has dermatitis herpetiformis - so I printed all these letters and scheduled a private meeting with her teacher right before school started. I also met with the School Nurse, Assistant Principal, etc. My daughter's teacher briefed all the other teachers (gym, art, computer, etc.). I feel like these letters get the point across that this is not to be taken lightly, I will say that the art teacher never called me (as I had asked on the letter) and she said it was because she was so overwhelmed by it........We have had problems with Substitute teachers - so I even had to write an additional letter with basic instructions.
Luckily, our teacher had a diabetic child last year, so she was somewhat familiar with food issues, and autoimmune diseases. You will find that unless someone at the school actually knows someone with Celiac Disease - they have never heard of it. So you just have to educate. To me - the "official" letters got the point across that I'm not exaggerating.
Good luck - we haven't be glutened at all this school year, and I think it is because we found a diligent teacher and we provided alot of information on Celiac Disease.
Hope this is helpful.
Stephanie Nolan
--- On Wed, 1/28/09, Cassandra Engel <[log in to unmask]> wrote:
From: Cassandra Engel <[log in to unmask]>
Subject: [CEL-KIDS] Starting School
To: [log in to unmask]
Date: Wednesday, January 28, 2009, 8:54 PM
<<Disclaimer: Verify this information before applying it to your
situation.>>
I need some tips on how to communicate and what to ask at school about a child
being a celiac. My child starts kindergarten next year and I am not sure what
questions to ask or who to talk to (principal, teachers, school nurse or
all?)? I know I can explain what celiac is, what it means etc -- but I need
some school specific advice.
Thanks for your help.
Cass
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