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From:
Dianne Cooke <[log in to unmask]>
Date:
Wed, 31 Dec 1997 15:48:48 -0500
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<<Disclaimer:  Verify this information before applying it to your situation.>>

Thanks to all of you who have responded to my question.  Since I got lots
of questions myself, here are the answers:

1.  Yes, we're seeing a pediatric GI specialist, Stefano Guandalini, at the
University of Chicago.  He specializes in malabsorption.

2.  No, Christopher was not on a gluten-free diet when his blood was drawn.
He ate wheat products 1-2 times a day, plus Cheerios all the time for
snacks. Since then we have cut back on his gluten food to wheat every other
day or so and no oats (instant blowout, no thanks).

3.  No, he has not yet had a sweat test for CF.  I thought the
manifestation of CF was malabsorption of fat, which he does not have--am I
wrong?  I will, of course, mention it to the doctor.

4.  The celiac panel is the gliadin IgG and IgA, I believe, the results of
which were negative.

5.  To the kind people who recommended Lactaid milk--he has a problem with
cow's milk of any kind, not just lactose.  I'm still breastfeeding him and
neither of us has had cow's milk since June because that completely killed
his appetite and gave him bloody stools (which cleared up when we stopped
having dairy).  I'm going to keep nursing him probably until 24 months,
just because I have a feeling it's the only thing that puts weight on him
at all.

6.  No, he has no developmental problems.  He's quite bright and active, is
learning to talk on schedule, and did all his motor stuff early.

I called the doctor's office this morning and insisted we be seen this
coming Friday, not a week from Friday, and we will be.  At this meeting I
plan to ask whether anyone will tests for parasites (as some people have
suggested), for CF, and whether a biopsy will be done.  If I don't get good
answers, I have two choices--try to find a way around the HMO and see
someone else, or go on the diet ourselves and find a new doctor when we
move out of town in June.

Thanks, everyone.

Dianne

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