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Subject:
From:
"Barber, Kenneth L." <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 2 Apr 2002 08:39:32 -0500
Content-Type:
text/plain
Parts/Attachments:
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Centers For Disease Control.

-----Original Message-----
From: Kathy Pink [mailto:[log in to unmask]]
Sent: Monday, April 01, 2002 11:43 AM
To: [log in to unmask]
Subject: Re: Small preemies


CDC?





--- "Elizabeth H. Thiers" <[log in to unmask]>
wrote:
> If you go to the CDC sight and look up the info
> on CP one of the problems
> again is, no one has been keeping an accurate
> count.  However, there was a
> time when the incidence (new cases) of cp where
> decreasing.  Now we have
> more medical advances where lower birth weight
> babies are surviving (the
> rise of the use of surfactants to help
> premature lungs).  With that rise in
> survival, we are starting to see a small
> increase in cp again.
>
> beth t. the OT
>
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf
> Of Kathleen Salkin
> Sent: Monday, March 18, 2002 4:14 PM
> To: [log in to unmask]
> Subject: Re: Small preemies
>
>
> It's very strange - if you go to WebMD.com and
> look up "Cerebral Palsy," up
> pops a link to an article stating that the rate
> of CP has not decreased, nor
> has the rate of premature births, in spite of
> all the medical advances that
> has been made since I was born 49 years ago.
> Doctors still don't know what
> causes CP, but they can (and do) guess at a
> list of possible risk factors,
> one of which is low birth weight and another,
> premature birth.  So it may be
> the luck of the draw, a random chance, or
> genetics (although that is not
> currently a huge risk factor), who knows?
>
> Kat
>
>
> "St. John's University Cerebral Palsy List"
> <[log in to unmask]>
> wrote:
> > My boys were born at 30 weeks. Early, but not
> too early if you consider =
> that fuul-term for triplets is 34-36 weeks.
> Nowadays, 85 - 90% of babies =
> born after 28 weeks are free of complications
> strictly related to =
> pre-mature birth.=20
>
> Bobby was 2 lbs. 14 oz. - had the most trouble
> breathing at birth, most =
> trouble with feeding, septicemia at 10 days,
> small bleed, slightly =
> enlarged ventricles. Perfectly healthy
> today.=20
> Joseph weighing in at 2 lbs even, did best of
> the 3 at birth - least =
> problems breathing, started feeds first, etc.
> Sustained most brain damage =
> in utero - ultimately died of complications at
> 20 months.=20
> Anthony was my biggest baby at 3 lbs. 2 oz. Had
> trouble with apnea but =
> otherwise stabilized fairly quickly. Massive
> brain bleed from prematurity =
> resulting in extensive PVL and ultimately
> diagnosed with spastic quad CP. =
> He should be much worse off than he is though.
> Typical 4 year-old, no =
> seizures, no concurrent medical issues
> whatsoever now (outgrew reflux by 9 =
> months).=20
>
> We have friends whose twins were born at 24
> weeks - one twin was 3+ lbs., =
> the other a little over 1 lb. The larger twin
> died of pre-maturity =
> complications at about a month of age; the
> smaller twin turned 5 last =
> weekend. We went to her birthday party - Bobby
> has a hard time keeping up =
> with her. :-)
> Other friends we know: first child - full term,
> typical pregnancy, good =
> birth weight, no apparent reason for the
> child's CP (she's in Anthony's =
> class). Their second and third children were
> both more than 6 weeks early =
> - perfectly healthy and typical!
> Our babysitter, 17 years old (honours student,
> plays volleyball and rugby) =
> was born at 24 weeks and weighed only 2 lbs.
>
> You just can't tell. I'm sure if we polled the
> list, there are no common =
> "causes" for CP. Even pre-maturity and very low
> birth weight doesn't =
> necessarily mean anything. I agree that there
> will be more babies "saved" =
> in the future but I don't know if the incidence
> of complications or the =
> severity of those complications will
> necessarily go up.=20
>
> Just my thoughts. :-)
>
> Yvonne
> Mommy to triplets:
> Bobby (nda);  Anthony (moderate spastic quad
> CP);=20
> and our Angel Joey {Apr.14/97 - Dec.31/98}
> (severe CP with many medical =
> complications...)=20
> Ottawa, CANADA
>
> =20


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