a physiatrist game me some of the help i needed.

--- Kendall David Corbett <[log in to unmask]> wrote:

> Mary Katherine,
>  
> Find a physiatrist (go to www.aapmr.org, there's a
> directory there); Janet saw one a couple of weeks
> ago, and it was the most comprehensive history and
> physical I've seen, and as Janet says, "That's
> sayin' something, cause you've seen a lot of docs!" 
> If you're anywhere close to Fort Collins, Colorado,
> let me know, and I'll give you the name of the one
> Janet saw.
>  
> Kendall
> 
> ________________________________
> 
> From: Mary Katherine Powers
> [mailto:[log in to unmask]]
> Sent: Sat 9/2/2006 12:56 PM
> To: [log in to unmask]
> Subject: Re: [C-PALSY] I'm new here - muscle
> stiffness
> 
> 
> 
> Hello everyone,
> 
> thanks for your comments.  I still have a feeling
> that there is
> something going on that has not been explained.  I'd
> like to get a
> thorough evaluation about CP from an expert to
> answer it either way. 
> Any suggestions?  I work in Washington DC.  At one
> point I had thought
> of going to Kennedy Krieger.  If there is someone I
> can see, or a place
> I can go, please recommend a name/place.
> 
> I'd like to go somewhere where the doctor takes
> his/her time to do a
> really long evaluation - the ones I've had tend to
> be a few minutes of
> "let me see you walk" and things like that.  I would
> be willing to pay
> whatever insurance doesn't cover.  any suggestions
> would be appreciated.
> 
> I walked more than usual yesterday and today I've
> got the overall
> stiffness back - it's harder to move than usual, but
> not as hard as
> last week when I had this.  I can stand up, sit down
> OK.  my arms hurt
> but I can type.  I do feel like everything is
> stiffer than usual,
> though.  I just kind of feel like lying in bed, but
> I've been told that
> is not a good idea for stiffness.
> 
> about the ibuprofen question - it helps me, but it
> has to be a high
> dose.  I have a prescription for 800 mg pills.  I
> usually take about
> one per day.  the standard dose from the over the
> counter boxes doesn't
> work any more.
> 
> thanks.
> 
> -----Original Message-----
> From: [log in to unmask]
> To: [log in to unmask]
> Sent: Fri, 1 Sep 2006 9:53 PM
> Subject: Re: I'm new here - muscle stiffness
> 
>    havng to fight yourself to walk sounds like at
> least
> mild cp to me. i am no dr.
> 
> --- Mary Katherine Powers <[log in to unmask]>
> wrote:
> 
> > I still wonder that.  I hope you don't mind all
> > these emails.  it's
> > hard to talk to people IRL because they - I don't
> > know - just usually
> > tell me to move on with it.  except for my
> > therapist, who has wondered
> > about the CP also.
> >
> > this sounds strange, but what I HATE the most is
> > that when I walk, I
> > fight myself.  I guess this is stiffness?  My
> lower
> > legs front (shins?)
> > don't want to move and I have to push them.  It's
> > this battle of who
> > will win, me or my legs, and I'm telling you, I
> feel
> > absolutely
> > ridiculous because I'm talking about walking a
> city
> > block or two at a
> > slow pace.  but I'm in this fight; does that make
> > any sense?  the
> > harder I push, the worse it gets.  I'm hoping the
> > stretching will help.
> >  it's seemed to help so far.
> >
> > I had a scary experience last week where I took
> two
> > short walks two
> > days in a row (Mon and Tues) and on Wed when I
> woke
> > up, I felt like
> > someone beat me with a baseball bat.  I was stiff
> > from my lower back
> > down to my ankles, and eventually the stiffness
> > traveled upward to my
> > neck and I got a bad headache.  *everything* hurt.
> > stretching seemed
> > to help with that, but I had a hard time with
> > climbing stairs, taing a
> > shower, moving from a sitting to a standing
> position
> > and back again,
> > and just about everything.
> >
> > sometimes when my hands get tired I feel like I'm
> > fighting them too to
> > get the typing done, but I have much better
> arm/hand
> > use than leg.
> >
> > I just don't like feeling that I'm in a fight when
> I
> > walk.  Is that
> > stupid?
> >
> > MK
> >
> > -----Original Message-----
> > From: [log in to unmask]
> > To: [log in to unmask]
> > Sent: Fri, 1 Sep 2006 9:14 PM
> > Subject: Re: I'm new here - muscle stiffness
> >
> >     Mary, you might just have a weird case of
> C.P.,
> > because Premature
> > birth,
> > balance, co-ordination and stiffness problems are
> > symptoms of C.P., and
> > mild
> > C.P. can sometimes fool doctors.  Each case of
> C.P.
> > is as individual as
> > the
> > individual.
> >
> > -----Original Message-----
> >  From: Cerebral Palsy List
> > [mailto:[log in to unmask]] On Behalf
> > Of
> > Mary Katherine Powers
> > Sent: Friday, September 01, 2006 8:19 PM
> > To: [log in to unmask]
> > Subject: I'm new here - muscle stiffness
> >
> > Hello,
> >
> > I hope you don't mind my being on this list.  I'm
> > new.  I do not have
> > CP, but I have issues with chronic muscle
> stiffness
> > that cause pain and
> > make movement difficult.  I'm doing physical
> therapy
> > for it.  I was
> > hoping to get some suggestions on dealing with
> > muscle stiffness that
> > might help.
> >
> > what I can do is limited, so the stretches have to
> > be really gentle.
> > I've tried doing stretches too hard and had a lot
> of
> > trouble moving
> > after that.  I've been told to take it easy and
> > build up slowly.
> >
> > I have chronic pain in my legs, back, neck,
> > shoulders, arms, and
> > occasionally fingers.  I'm overweight and I've
> been
> > told that although
> > that does not help, it's not the cause of the
> > problem.  I was told I
> > was out of shape because people much more
> overweight
> > than I am have
> 
=== message truncated ===


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