Dystonia is the uncontrollable movements in certain parts of the body. Ie:
muscles in say your arm contract and jerk pretty much on their own.
Guys am I explaining this right?
I have it in the cervical part of my spine (as well as limbs) and have
herniated disk at c3 and c7 with bone spurs. In those vertabre associated
with those disk.
-----Original Message-----
From: J. McCarthy [mailto:[log in to unmask]]
Sent: Friday, September 27, 2002 11:09 AM
To: [log in to unmask]
Subject: Re: Fibromyalgia
What is dystonia?
I don't know if it's aging with CP or what...I just
know that there are mornings where I too feel like a
truck hit me. And with my left knee, there are times
where it is so stiff and stuck in its current position
that my husband has to bend (or straighten) it for me.
If I have been sitting for awhile, it's very hard to
get up because my knees are so stiff. Everything just
seem to worsen within the last 6 months.
Last week, I had a panic attack / depression down
swing because I was sure that my good left side wasn't
going to support me any more and that I may have
something more debilitating than my CP. In that frame
of mind, I was imagining all kinds of losses of
independance and stuff.
BTW, I do office work at a large University.
Jen
--- "Barber, Kenneth L." <[log in to unmask]> wrote:
> SOUND LIKE AGING WITH CP TO ME. I'd bet they will
> not find any of what they
> are looking for.
>
>
> What kind of work do you do? Do you have dystonia
> with your cp? If so,
> where?
>
> -----Original Message-----
> From: J. McCarthy [mailto:[log in to unmask]]
> Sent: Friday, September 27, 2002 10:32 AM
> To: [log in to unmask]
> Subject: Fibromyalgia
>
> Sorry I've been out of touch for awhile. Been
>
> My doc and I are trying to figure out why my joints
> ache and stuff (feel like I'm 100 years old). We
> have
> discovered two things so far:
>
> 1) I have 2 herniated discs in my neck which is
> causing my left arm and hand (the good side!) to be
> in
> pain and/or numb at times.
>
> 2) My left knee (good side) which has been
> increasing
> hurting me and is stiff and weak, came up negative
> on
> the MRI. I thought that they would see lots of
> arthritis...which could then explain the achyness
> that
> I have in other major joints.
>
> So, we now are going to look at lupus, MS and
> FMS....
>
> TTYL,
> Jen
>
> --- Magenta Raine <[log in to unmask]> wrote:
> > Ken, was it you or Kyle who thought he might have
> > fibromyalgia, I forget. Any
> > way, feeling like you got mugged or ran over by a
> > truck is what fibromyalgia
> > (FMS) feels like.
> >
> > mag
> >
> > www.itilink.com/traine.iti
>
>
> =====
> TTYL,
> Jennifer
>
> __________________________________________________
> Do you Yahoo!?
> New DSL Internet Access from SBC & Yahoo!
> http://sbc.yahoo.com
=====
TTYL,
Jennifer
__________________________________________________
Do you Yahoo!?
New DSL Internet Access from SBC & Yahoo!
http://sbc.yahoo.com
|
