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Subject:
From:
Cindy C Curtis <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 1 May 2000 20:10:05 -0700
Content-Type:
text/plain
Parts/Attachments:
text/plain (50 lines)
Definately the interaction w/ people.

Cindy C.

On Mon, 1 May 2000 22:21:44 +0100 Deri James
<[log in to unmask]> writes:
>                   Betty Alfred <[log in to unmask]> wrote:
> [snip]
> >
> > Are people patient if they don't understand something you've
> > said?  I guess I'm just wondering what the worst thing is about
> > having speech difficulties -- if it's the speech itself, or the
> > people you interact with during the course of the day.  I guess
> > this question is for anyone who wants to answer.
> >
> > Betty (I'm changing my name to curious George.  At least nobody
> > will call me boobs anymore).
> >
> >
> Hi Boobs,
>
> Speech is the most common form of communication by far.
>
> Having problems communicating verbally is the MOST frustrating
> part of CP. We all want society to accept us, appreciate us, but
> if we can't "talk" to society, how are they to know there is
> anything there to appreciate.
>
> This is a particular problem in social situations, since they
> often occur in "noisy" environments - pubs, discos,
> bowling-alleys. In a group social setting you find sub groups
> form where the norm is for pretty unstructured conversations -
> everyone chips something into the conversation - this is the most
> difficult time. You may think of the wittiest, sharpest, bon mot
> to interject into the flow of the conversation. Several things
> can go "wrong", noone understands what you say, the whole
> conversation stops, and you have to keep repeating it, changing
> the words here and there in the hope someone "gets" it, by which
> time the original context and whatever nuances you hoped to
> impart has been completely lost and its no longer funny at all.
> Or, worse, the person closest, catches what you say, repeats it
> themselves, and happily receives the plaudits of laughter.
>
> Yes, it is frustrating, and there is no way around it. Just
> because I can be hard to understand does not give me a right to
> expect everyone to make the effort to listen.
>
> --
> Deri James

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